looking for NPH support: I have NPH and... - The Simon Foundat...

The Simon Foundation for Continence

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looking for NPH support

porcamiseria profile image
1 Reply

I have NPH and i am looking for a support group or individuals with the same diagnosis to share information and talk about our experiences

elina

1 Reply
incon1982 profile image
incon1982Partner

I want to confirm that you have Normal Pressure Hydrocephalus. This is something a cousin of mine went through in her early 80s, and once they got the pressure down, she was walking again normally, and her bladder symptoms disappeared. She is now nearly 92 and doing well.I am not sure if I have seen anyone else with this diagnosis within the group, but I hope someone with some firsthand experience will respond.

I did find this link to finding support within the USA in local communities. If you are in the US, perhaps there is a group near you. hydroassoc.org/find-a-commu...

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