Hello New Members!!

Welcome to all the people who are joining our community,. we may only have 12 members as of the writing of this post but i am sure that our numbers will steadily increase as time goes on!! feel free to ask a question, write a blog, suggest a poll or comment on any content that is already present! In time this community will be linked with NHS choices and what we discuss in it will go directly into improving care for people affected by Sickle Cell

Thanks again


7 Replies

  • Hi, I just want to say how pleased I am to have this community to care and share with. It is my grandson who is living with sickle cell, he is about to turn 3 years old and i just want to be able to offer the best care and support to him that I can.

  • Hi, thank you for making this site :) We need something like this to come together!

  • Hello, I too am pleased to see this site and hoping that it can progress. My baby was diagnosed with sickle cell 2 weeks after birth last year and I have found it difficult to understand as a parent. I want to be able to educate my daughter when she is old enough to understand, I want to understand more myself.

  • I am glad you are here too.

  • Hmmm. I will say this Hydroxyurea has changed my life, I wish I had it when I was a kid...

  • Thank you, i hope this site is helpful.

  • I am so pleased that people are now talking openly about sickle cell disease.. Many people not just African Americans have this dreaded illness.It has affected my family and my life.. I get so depressed sometimes. I feel like I am being punished for something.Then I pray to God for strength and guidance and I feel better!

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