Knowing your genotype. : This post is a... - Sickle Cell Society

Sickle Cell Society

1,997 members521 posts

Knowing your genotype.

jo19 profile image
jo19
3 Replies

This post is a huge concern for me because for years, I have come across a lot of people from Africa who were given a wrong genotype because there was a mistake in the way their blood tests were processed . A lot were told they were trait when they were actually SCD. A lot have suffered unnecessarily and haven't been able to get proper treatment. If you feel this is the case, please make sure you check again to be sure and safe.

Written by
jo19 profile image
jo19
To view profiles and participate in discussions please or .
Read more about...
3 Replies
Sibmum profile image
Sibmum

This happened to my daughter. Found out at 14 years old she had sct

QueenoftheJungle profile image
QueenoftheJungle in reply to Sibmum

Hopefully she's doing better..

Mine is 8years,found out when she was an infant she is SCD .

QueenoftheJungle profile image
QueenoftheJungle

So true..

This cases are more in Africa.

You may also like...

Hydroxycarbamide Side Effects - What are your experiences?

more tired and about 2 days ago i developed a rash across one side of my face - i believe this is a...

Sickle Cell Trait is a disease.

statements about Sickle Cell Trait because it is wrong. If you have the Trait you will have pain in...

I'm a sickle cell. How can I get rid of my yellow eyes

to someone because of my yellow eyes. am always on dark shades. Any solutions. Thank you

Crisis but only sickle cell trait?

year old lady and have been told iam sickle cell trait for many years now. what i need to know is...

Oxbryta Receives FDA Approval for Treating Sickle Cell Disease

Oxbryta, 92 patients were given 900 mg, while the remaining 92 patients were given a placebo. After...