Stage 3

[Heidi1965]

Hi I have gone from borderline having debulking surgery to having a recurrence which was stage 3 low grade during my 3 year check ups all my bloods came back fine , not having a cervix I was shocked that I had started to bleed contacted my oncologist had more bloods including tumour markers which where all fine , pet scan showed 2 tumours but during surgery found an additional tumour had carbo and taxol now bk on 3 month check ups I do worry as scans are not part of the check ups and going by my ca125 before how am I going to know if my tumours return 😩

[Ruebacelle]

Well...I wd insist on 3 month scans

[dmt72]

Dear Heidi1965

I am also stage 3 low grade. I am however only 6 months out from Chemo. I am part of a study where I get CT Sagan’s and bloodwork every 3 months. Also on Letrozole for maintenance on this study. Maybe you could ask your doctor about that. Thank you for sharing your story. I am always anxious before each scan and tests for recurrence.

Sincerely, Dawn

[delia2]

Hi. My CA125 is always low so I get scans every six months or if I have symptoms. Maybe you could ask about every six months?

[Catcher910]

In the US it seems that the key to getting every 3 month scans is as a drug trial participant. Otherwise it's just not standard of care apparently, and insurance approval would be iffy.