Has anyone else heard much about this... - SHARE Metastatic ...
Has anyone else heard much about this?🙏🏼
Hey Autumn
I haven’t heard of this until now -thank you for sharing this encouraging development. I’ve been feeling a bit low and this has given me a little boost.
Yesterday was my 3rd year with my stage 4 diagnosis (had MRI to celebrate 😂) and oh my does time fly and the only clear thing I remember hearing at the time was “we can’t treat it, but we can control it”. It took me ages to realise it was code for “here’s a piece of string (aka your life) but we don’t know how long it is but we will be extending the string (aka treatment)”. All I heard was your a dead woman walking! A massive loop the loop rollercoaster ride of emotions for sure!
I’ve been on Cape since August 22, I’m hoping for stable results at least!
Happy holidays & and the very best for 2023!
Nx
Dear Ntash01 - - Your post reminded me that it will be exactly three years on New Years' Eve that I went for the biopsy of my liver. Then, I knew. Four days later I was on a ship bound for the Panama Canal and out of contact with anyone. When I returned at the end of January, I was told, officially, that it was metastatic and that it was" incurable". I try to think of metastatic cancer as chronic rather than incurable.! What is your thinking now? Are you in pain?
Hey Jersey… why do crappy things happen during holiday seasons 🙄
I’m not in pain and I didn’t get the stable I’d hoped for following 2nd MRI on Cape. Just getting my head around things - will update shortly in a new post so it doesn’t get hidden in this thread as I’d like the advice/experience of others - hope you don’t mind, I’m still processing.
Happy holidays
Nx
Yw!😊Merry Christmas🎅🏼🎄 and all the best in 2023!
Dear Ntash01 that’s exactly how I’ve been feeling . 3 years this May 13 and “highly treatable but not curable” was supposed to make me not lose it - but every bit of time that goes by you realize it’s a guessing game. I have good days and not so good (this Christmas was a tough one - keep saying rally rally it’s Christmas! The kids are home!) but just dreading what if it’s my last. And I’m not a wallower this has only recently been happening. Anyway big hug to you and the ladies and thanks Autumn love for posting this encouraging article . ❤️
I read this article when it first appeared but unfortunately the results weren’t good for everyone. A treatment that has a 30% success rate is great if you’re one of the 30%. Researchers are working on improving that number but it’s probably still a while off.
medicalxpress.com/news/2022...
It’s interesting to see advances and there’s been several new treatments released this year so there’s hope ahead.
I also saw and posted this article a few weeks back. I am keeping my eyes peeled for similar trials near me, but I might be open to a trip to NYC and Mt. Sinai. It’s always worth a phone call or email to the doctors to find out more. These vaccines and T-cell therapy are opening up new possibilities. There is so much in the pipeline
I am fairly near Mount Sinai. If you get into a trial there, let me know!
I definitely would let you know and update the board. Right now things are going very well on Ibrance and Letrozole. However if there is a change I’m calling Mt. Sinai.
It makes me sad to think they have a shot that could cure us and has been proven safe and is cheap to make, but not offering it to us who are dying with this disease, yet I get a pill that costs 17k a mo. and doesn't cure me. I would love to take a shot at this vaccine, why are we denied compassionate access or whatever it's called? I'll take the 3 in 10 odds! better'n ZERO chance of being cured!
I agree!
Sounds like a miracle
I have not heard about the development of this particular vaccine. Sounds very promising.
Thank you so much for sharing!
Yw! Merry Christmas everyone!🎅🏼🎄
sorry for my sour grapes, but all evil under the sun is usually down to MONEY and GREED, those are the facts, pure and simple! Merry Christmas everyone and God bless you and heal us all in Jesus name, amen!
I do not mean to burst anyone's bubble, but it is the Daily Mail, not much more than a tabloid so I would not believe anything they would print.
Great follow up article. Biggest Medical breakthroughs of 2022. The cancer vaccine is listed as #5. Merck, Moderna, Vanderbilt and Mt. Sinai all highlighted as working on a vaccine. So great to see all these developments
dailymail.co.uk/health/arti...
Awesome, Ty for sharing!🙏🏼😊❤
great article, uplifting! <3
hi AL.
I was lazy about reading the article...lol....but I finally got to it....so that is why I am jumping in at the end here. but happy I did take the time to read. would that not be amazing? thanks for sharing some hope🙏
happy holidays to you and your family🌲🎅⭐
carole XO
Has anyone else developed lung issues while on Ibrance? 
Anyone else have Tendon Issues?
Before anyone else is gone . . .
Petscan was completely clear, even my mets to my spine were gone. Has this happened to anyone else? 
Mixed response to treatment , anyone else ? 
