I want to tell you all how much you mean and how much I appreciate all the information, advice and just plain sharing are done on this board. There have been several that I thought to write notes to expressing my thoughts but procrastinated and now they've withdrawn or just gone. The road to hell is paved with good intentions - TRUTH! So know today that you are an important part of my life and this journey none of us want to share. I hope all are doing well on current treatment and we have many more days/weeks/years to share our stories.
Beautiful morning wishes from the hills of southeast Tennessee.
Manon
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TNVol
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Wishing you the best. I was a TN Vol way back in 1971 and grew up in Memphis. I now live in North Alabama. I am doing well on Ibrance and letrozole for over 5 years,
I’m happy you expressed this feeling of gratitude, I feel exactly the same as you. I hope members that want to leave just say ‘au revoir’ for now — no reasons needed. At least we know in this uncertain game we play they need a break from here. I have given my opinion in the past to members that want to blame others for leaving the board, I don’t agree with that.
We don’t all have to be active all the time, no rules or regulations….but I guess we miss and notice those that just drop off the radar all of a sudden!
Lynnfish, Ycats amongst others (you know who you are) you haven’t been on for a while….when you’re ready…
I am one of those that comment some and then probably seem like I have disappeared before I reappear out of the blue again. I feel bad about it but my life is busy, with constantly changing schedule, and I get overwhelmed with too much time in general on social media, emails etc. I do appreciate the group a lot and I like to share helpful tips when I have time to sit and write. So thank you for your understanding 💕
I am the same way. First, I never read any new publications or posts about trials or anything like that. I never offer suggestions on what I think a person's onco should be giving them. I usually just come on, if like now, it is spreading and I am put on a new treatment plan. I see what side effects some suffer so that I have a possible idea. But lately, I just feel more depressed when I come on here. Not because of the ladies, but I guess bc of the way I am seeing things now.
We all have our ups and downs for sure!When I go through a low now I make much more effort to remind myself to find things that give me joy. And through that I can lift myself up again. It is sad to think about people who might not be with us anymore, I know that all too well, but as long as we are alive we need to keep moving forward because this crazy thing called life is not gonna stop!
Well said, Manon- I totally agree and often feel sad when I notice someone has gone from the regular posts. We are like a little community of close friends on here and it helps me not to feel alone- which I have felt in the past, despite my wonderful family, because nobody else totally “gets it.”Love to you and all our community
Lovely post. I love this site, too. The advice, information and comfort provide by so many is welcomed and appreciated. I am sad for the ones who have left the site for various reasons and pray for everyone who is on this journey. Sending hugs and positive thoughts.
Thank you so much for writing this note. I feel exactly the same way, although mine is also tinged with a bit of guilt because I am on and off here so sporadically, as time and mental energy permits, that I sometimes haven't had a chance to realize someone I particularly like has disappeared, until it is pointed out by another. I love to be on here and read the comments of wisdom and support, and help out myself too when I can but I just find life in general overwhelming so that's why I am an infrequent poster. I do worry about those regulars who disappear and no-one has had contact with them. I hope they remain well and are just taking a break, though I also know that that is, sadly, not always the reality. Thank you to everyone who, aware of it or not, has helped me through this journey of twists and turns that none of us asked for! I have always been grateful for finding this site and group! ❤️🌼
Best wishes to you and many more years of living a good life. I have been on Ibrance and Letrazole for 2 years + and have been NED with last 3 PET SCANS! Praying for many more years! Just got back from a wonderful camping trip to Pigeon Forge! God bless you!Judy
Manon, thank you, l want to echo how very grateful l am to everyone here. Sad for those we lose to the disease sad for those who choose to leave (but glad they are caring for their selves ). ❤
Manon, Yes we are here for you! I hope you are doing well and enjoying the rolling hills of TN! I’m on Ibrance and letrozole 4 years now. I hope you get many more years on your current protocol and are tolerating the side effects. I seem to go through periods of time when I want to take a break off Ibrance but those feeling subside and I get to feeling better. It is a roller coaster ride!
What a beautiful sentiment to share - and how true it is. While I am still relatively new to the group I am amazed and grateful that when I have a question there are so many out there eager to give advice/experiences. Also, when I can help anyone I love to jump right in. It is like a "warm security blanket". Thank you to all of you who are here for your wisdom and love. Please know how much all the help is immensely appreciated!!!! Blessings!
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