Anybody out there have mets mutate fr... - SHARE Metastatic ...

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Anybody out there have mets mutate from hormone + to hormone-? Hormone + in bones, negative in liver. What is your treatment? Is it working?

Pinkpanzie profile image
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Liver met

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Pinkpanzie
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Contrarielle profile image
Contrarielle

Hi, I know it happens but it hasn't happened to me (as far as I know). Good luck with your treatment.

valentinecalico profile image
valentinecalico

Dear Pinkpanzie,

I don't have any info for you, but I am interested in the replies you get as I am likely in the same situation as you. Bones only for 2 years, then liver mets suddenly. I had a liver biopsy last week and have no results yet, but the onc wants to check whether the cancer in the liver is HR- compared to the initial (2006) and the bone mets, which were HR+. Where are you living? I am in Newfoundland.

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Pinkpanzie in reply tovalentinecalico

I am in Ontario and want to visit NFLD so much!!! I was blindsided to find the mutation. I am de novo and on first line.

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