Mets to brain?

[blms]

Anyone have mets to brain and what is their story?

[MyMiracle13]

I have Mets to brain. Brain Mets discovered when I had my PET scan exactly 1 year ago today. Confirmed by MRI. PET showed only 3 lesions but MRI showed multiple small and scattered lesions. Since the lesions were too many for SRS, I had WBRT on August 24, 2020 for 10 sessions. The radiation sessions were quick and painless but recovery took around 3 months. I suffered fatigue, weakness and loss of appetite and weight. I lost my hair too but it started to grow back around 3 months later. They did hippocampus sparing and prescribed Memantine for 6 months. Thank God I am doing okay now and will have another MRI end of this month.

[kduck in reply to MyMiracle13]

Did you have any symptoms? What is your subtype her2+

[blms in reply to kduck]

Im HER2 negative, so not so fast to brain as positive but all the same. I chose not to look at my results and wait until tomorrow when I see my onco. that is first for me. I always look but as I do not know much about the brain and what I might read, I decided a bad idea to look. Let's see how I sleep. My big concern is the crazy BP variation and the high pulse continually for past few days!

[MyMiracle13 in reply to kduck]

I’m ER+Her2-

[blms in reply to MyMiracle13]

Were either of these proton therapy?

[SeattleMom in reply to MyMiracle13]

God bless you and many prayers for good results on Pet later this month!! 💗💗🙏🏻🙏🏻 Linda

[PJBinMI]

One of my friends developed brain mets. She had radiation and went downhill skiing right after the rad tx was over, like the very next day! And she did not ski the "bunny trails" but the serious trails for experienced skiers! That sure impressed me. I jdon't remember exactly how much longer she lived but it wa s over 2 years. She had an aggressive her2 + cancer.

[blms in reply to PJBinMI]

Wow! Waiting for doc now to hear results

[Jaxon2007]

I have a friend that has multiple mets to the brain. She had radiation and is doing wonderful.

[Tolife_18]

I have a cerebellum lesion which was diagnosed September 2020 when I moved during my spine MRI. There was no symptoms. HER2 negative. Had a SBRT in October, no side effects except fatigue and some hair loss. Follow-up brain MRIs (most recent in July) showed that the lesion decreased in size.

Good luck!

[blms]

Well it does not appear to be cancer spread to brain--although they only did a CT not an MRI. But if cancer was what is causing my BP drop issue something would more than likely have showed up. I am seeing a vascular surgeon tomorrow to get a doppler test ordered just to knock that blockage possibility off the table. Then I just decided to cancel my week trip to the Highlands, NC until I get some answers on this passing out nonsense. I hope so any way. I will see my cardiologist next week.

[Timtam56 in reply to blms]

This is wonderful to hear. I’ve been thinking of out you. But not good that you are still passing out. Are you? Or do you mean just that one episode?

[blms]

Yes, definitely more than once. My concern is that it was getting more often. Interestingly enough, this morning I woke up feeling pretty darn good. First time in a few weeks! Now, still would LOVZE to know what is going on. I am getting nowhere from oncologist and the team. I am seeing my cardiologist tomorrow at noon. Of course, no heart racing or weird BP at all today or last night. I just want an answer so either I can or some doctor can give me strategies. Until today, I was suddenly becoming afraid to be alone in the house. That is NOT me!!! I am extremely independent and didn't even marry until I was 38. So, wish me luck to get some idea tomorrow--something not too bad either!! Let's hope that the IV chemo did not damage my heart which has always been really strong. How are you doing? Have you been overrun with this new Delta virus in your area? What strategies do you take?