Hello, I am new here, I live in Turkey, ER+ MBC, on Kisqali and Femara for a year. Any experience with these meds? Best wishes to everyone

[Dafi]

CA 15-3 still elevated after 1 year on CDK4/6

[Thrifty51]

I was on the same medicines for 22 months. I was No Evidence of Disease for about 18 of those months then had mets to the peritoneal area of the stomach and switched to Xeloda and my markers are coming down again. I found Kisqali very tolerable. I did have to lower the dosage from 600mgs to 400 about 3 months into taking it because of fatigue.

I wish for you the best and that those numbers will reduce even more!

Audrey

[Dafi in reply to Thrifty51]

Thank you dear

[SabaAK]

Hi Dafi:). Hope you are doing well. You said that you live in Turkey. I wonder if you have heard about Chemothermia? This is a clinic in Istanbul that specialised in treating metastatic cancers with new approaches and treatments. I’ve emailed them myMom’s test results and waiting for the respond. I’ve heard it’s expensive. But patients get full remission after treatment there.

[kduck in reply to SabaAK]

Please share info!!!

[SabaAK in reply to kduck]

chemothermia.com

[Dafi in reply to SabaAK]

I had no idea, thank you!

[SabaAK in reply to Dafi]

chemothermia.com

[SusieIM]

Welcome, this is a good support group. You will find, that we understand and can give feedback.

[8576]

Welcome here and sending good wishes back to you! Glad you have found this site. It is a great resource for info and support. I haven't any info about the medications but I am sure you will get some replies.

Cheers, June S.

[PJBinMI]

I'm a long timer with MBC, a bit more than 17 years with bone mets from the get go. I was diagnosed before the targeted drugs like Kisquali were available. Femara was my first medication and I got almost five years from it, and then over 9 years from Faslodex. I've known several women with estrogen receptor positive MBC who have gotten more time from Faslodex than they did from their initial Femara. I'm now on just third line treatment (Exemestane) which had done well for me for over 3 years but I may need to switch meds soon. I am having scans later this month and will know more then. Either Tamoxifen with Kisquali or one of the first line chemos with Kisquali are what my own onc and the bc specialist I see for second opinions have suggested that if the next set of scans show more progression. I live in the US, in Michigan near Lake Michigan in a very rural area. I hope you will do well.