About treatments: Hi Everyone, Last... - SHARE Metastatic ...

SHARE Metastatic Breast Cancer

6,715 members8,275 posts

About treatments

SusieIM profile image
16 Replies

Hi Everyone,

Last week I had a PET SCAN. Today found out I have mild internal progression, have been on Xedola last six months. At first it seemed to be working, now seems to be inching its way back up, with the cancer markers. Doc wants to talk with me tomorrow morning. I feel discouraged, this is like my 5th treatment. For those who pray, please pray for me. I don't know where to go from here but I don't want to give up.

Written by
SusieIM profile image
SusieIM
To view profiles and participate in discussions please or .
16 Replies
MyMiracle13 profile image
MyMiracle13

Hi. Sorry to hear your news. But don’t give up. There are still treatments down the line. Have you exhausted oral chemos? I’ve heard of Vinorelbine (Navelbine) oral chemo. Maybe you can ask your onc about it. I pray and I will most definitely include you in my prayers🙏. Keep the faith and believe!

SusieIM profile image
SusieIM in reply to MyMiracle13

Thank you for the in for., ill look it up. And yes, please do pray :-)

Are you still on Oral meds? There are some good chemo drugs out there that aren’t too rough.

SusieIM profile image
SusieIM in reply to

Xedoa is in pill form,

SusieIM profile image
SusieIM in reply to SusieIM

Thank you for your input , :-)

Hi SusieIM -

I'm so sorry for the stress, truly, and am sending positive energy your way...

And I do hope you don't give up, would definitely feel premature to me. If IV chemo is your next treatment, let me mention that I've been so encouraged by what I've read on this site recently about how effective it can be! These are the big guns in our arsenal that they pull out after the little BB guns of oral chemo stop working!

Please take care and know that you're in my thoughts...

Best,

Lynn

SusieIM profile image
SusieIM in reply to

Thank you! No am not not giving up, just not sure what to do next.

SusieIM profile image
SusieIM

Thank you :-)

Never give up lovely. You have come this far and there’s so many meds out there. You must stay strong for your wellbeing. Sending virtual hugs and let’s us know how get on with the Oncologist.

Best wishes

Cheryl

LibraryGeek profile image
LibraryGeek

Sending love and good thoughts your way x

Timtam56 profile image
Timtam56

I don’t know answers to all this, as I don’t understand these further treatments. I bet I will one day though.

But you are in my thoughts.

Sometimes this disease seems bigger than us, then we sometimes get a break. So keep searching. And as Sandra says...clarity and knowledge!

🌸Sending positive thoughts your way right now.🌸

jersey-jazz profile image
jersey-jazz

My heart goes out to you and so do my prayers and good wishes. Tomorrow, hopefully, worries will recede when your oncologist explains it all to you and offers a way forward.

XXX OOO

The not knowing and the questions

hdhonda profile image
hdhonda

Dear Susie,

You are in my prayers. May the peace of the Lord give you comfort. Blessings Hannah

Tolife_18 profile image
Tolife_18

You are in my thoughts and prayers! 🙏🙏🙏

Wishing you all the best for your meeting. Hang on in there, and keep us informed.

Clare x

Have-faith profile image
Have-faith

Hi Susie. You are not alone. I found out about 3 weeks ago that xeloda failed me after 5 cycles. So next week I start my 5th line of treatment since dx Oct 2017 and will be trying Doxil iv chemo. I was disappointed, but just accept this as pet of the journey. I have seen positive posts on the effectiveness of some of these treatments and sometimes with low side effects. I am sure your onc will discuss options with you. Doxil is administered once every 3 weeks and most people on Doxil do not lose all their hair - maybe just thinning. Were you working while on Xeloda? I have decided I need to focus on me now so I plan on going out on disability. Infact, I am informing work tomorrow...feeling a bit nervous about this, but I have given it a lot of thought. Good luck. Keep us posted on what your onc suggests! Faith

Not what you're looking for?

You may also like...

Indecisive about Treatment

start Verzenio. My oncologist also wants me on Xgeva. I’m not sure I want to take Xgeva or how...

Question about second line treatments

39.8, the marker was at 42.6. Going for a scan next week to check for progression, last scan 3...

2nd opinion about treatment change?

line of treatment only lasts a short while. I am not complaining but worried about treatments...

Nervous about Fulvestrant and Piqray treatment

Hi all! I just had my 2nd pet scan results back and it was not good. The report showed that I have

Additional treatment.

test! ) So he had to give in or give me an extra week off. He then spoke about giving me infusions...