PET Scan

[kduck]

I have a scan schedule for Friday morning. Im s worried and scared, I can't eat nor sleep im so worried. I know nothing I can do to change the results but pray. Im asking for your prayers and love. It's funny how when it's time for scans every part of your body hurts. Im praying for better treatments and a cure. God bless us all! Thanks for everything!

[nstonerocks]

💕🙏

[kduck in reply to nstonerocks]

Thank you so much

[Francesca10]

Just went through it so I know how you feel. One sweet lady on here wrote “you are already living with whatever it is”. That became my mantra thru scsnxiety and waiting for results. Sending you hugs, love and prayers. ♥️🙏🏻🙏🏻🙏🏻♥️♥️

Frances

[kduck in reply to Francesca10]

Thank you so much

[MyMiracle13]

I feel your pain as I too am due for a scan very soon. This is my prayer and hope it helps you as it helps me - “ I surrender myself to you. Lord, please take care of everything.”

[kduck in reply to MyMiracle13]

Thank you so much

[kduck]

Thank you so much

[Pollingxx]

Best wishes xx

[Hidden]

Hi,

Scan time is never easy, is it? I hope that Friday soon gets here and that the PET CT scan will go well for you. Unless the aches and pains you described have been going on for a while and causing you issues, I would say it is probably psychosomatic as the day draws near for the scan. Can you plan something nice to do after the scan such as going out to eat, or seeing a film? If you have something good to look forward to it might help take your mind off the anxiety you are feeling.

Take care,

Sophie

[kduck in reply to Hidden]

Thanks

[Have-faith]

Oh.... I wish we could snap our fingers and take all the pains, disease and worries away. Stay strong. Your scan could show great improvement or stable which is also very good. Remember to breath! Can you distract yourself? Keep busy? Go for a walk or read? I hate to think of you worrying non stop until Friday. Faith

[kduck in reply to Have-faith]

Thanks

[mariootsi]

You have my prayers and love for a good scan!!!I get the same way before scans.

I don't know what the answer is to being calm before a scan! I pray you find it!

Logically we know we can't change anything with worry. I just think it's a human emotion that is amplified by our situation.

I pray Friday comes quickly so you get it over with.

Love and hugs,

Marianne

[Thrifty51]

I truly empathize! I had one scheduled today and now it has been postponed until tomorrow. I wanted it over with. Chin up. We will make it through!!

[Bailey3266 in reply to Thrifty51]

They did that to me once bout a year ago & INC scheduler said they’re not supposed to reschedule stage 4 pats? Idk bout that; but it never happened again.

I have severe “SCANxiety” which is not the scan itself...it’s that and waiting 2 days for results. I realize 24 hours would be better.

I’m relocating and just got new ONC and scheduling my last scan took 2 weeks and it was a nightmare—old onc needed to cancel order so new onc could get CIGNA approval; I hope that’s never repeated.

Quick ?:

I had to drink 1 bottle of prep nite before for some reason instead of just 1 hour before CT Scan? Is pet scan better or do you still need drink; I get that hot flush feeling iv too every time.

Lastly, (I’m bit scattered, sorry) to questions above:

My old onc said I could go to every 6 mos Scans unless I felt different—I thought bout it and said let’s stay with what I thought was the “protocol” of every 3 mos CT Scans (though I see lots of people get PET Scans). Idk the difference? Anyhoo, my new ONC said he’d like to do every 4; I said no; then he convinced me at my last visit saying it’s not much different; but it’ll be now 3xs a year instead of 4 xs. The more I think of it; that is better for the Scanxiety aspect, I guess; maybe not so much staying on top of things? Any insight on that is welcome?

I’m asking this in relation to above comments as if every 4 mos is all the same; then I’d share that thought with everyone; bc I think 99% of us get Scanxiety—which is more about the results. I honestly put it out of my head until about 1 month before scan & it worsens daily—worst being the 2 day wait after the scan. Wish since it’s my test I could get results as soon as doc gets them; but I understand that could be dangerous and frightening if I didn’t understand or goodness the radiologist was having off-day; that is why ONC needs day to review then I guess if there’s a new plan needed—you’d hear it all at once; instead of now worrying what will come of a bad scan result until you see the ONC. Pops rambling against. Hope I helped!

[Gaily71]

I understand your stress. My scores went up again and I have to have scans too. You are in my thoughts and I am sending you positive vibes. Keep strong... we are all behind you=)

[kduck in reply to Gaily71]

Thanks

[DinNorCal]

You’ve got it! Praying for no progression on your scan. And easing of pain.

I have to schedule my next scan for first week in August and am starting to feel the anxiety. Much prayer and love and peace being sent your way.

💗🙏🏼🙏🏼🙏🏼

[kduck in reply to DinNorCal]

Thank you so much

[kduck in reply to DinNorCal]

Thanks! Hope your scans are great as well! God bless

[Jerseygirl45]

I will say a prayer for you that all goes well.

Barbara

[kduck in reply to Jerseygirl45]

Thanks

[NPmary]

What has helped me is realizing that whatever a scan shows I have already been living with it. (Former hospice nurse who now also has MBC, Adair told me this).

[Bailey3266 in reply to NPmary]

I’m a nurse too; I think it’s somewhat true we make the worst patients not just for cancer. Anyhow, I think that is so true; it’s the RESULT itself and CHANGES esp when you have improvement, no progression then NED &the longer I’ve been on I/L combo the more I fear that I’ll hit the time-limit for I/L & then what. So for me, it’s the “unknown” fear of progression even tho ONC always says “we have whole slew of other ways to treat this”; which I believe is true to a point—it opens up millions of ?’s for me—will new treatment work, will I til side effects, etc. then I read of sudden death from entirely different causes—knowing your stage 4 is probably hardest part of all of this—today I read a 30 year old athlete died of heat exhaustion I forget working in his house... a friend of a friend same age as me 54 yo just died in her sleep 2 weeks ago, etc...that is when I put it in perspective best I guess; lightening could also shorten anyone’s life so it’s not just me with Mets; death can come to anyone at any time. Sometimes I wish I didn’t know & went quietly; other times I’m grateful to know as I cherish every day—it’s just that my kids don’t see it that way (cuz they’re 18 & 20; I get that, totally); but still I wish everyone cherished every minute of every day; but they don’t—life gets in the way, I guess! That’s the irony!

Again I’m sorry to ramble. I usually hustvview posts and no comments I’ll go back to that for a bit; cuz I cannot seen to shorten my comments!

All in my thoughts/prayers always!

[NPmary in reply to Bailey3266]

Bailey, you have Nothing to be sorry for. I get it and often feel the very same way. By the way, l was a nurse practitioner for many years (I had to retire a year sooner than l wanted to because of this disease). Consciously l am doing better than l used to prior to scans however my daughter tells me that a couple weeks before every scan l act worse, have more pain, in her words "act like you're dying - l guess it's true my mission is to Stop doing It! Wish me luck. By the way l am probably older than you, my kids are 39 and 41, 5 grandchildren :). I wish you the best of outcomes and a long time on l/L (I've been on it since 10/2017). ♡♡♡

[Bailey3266 in reply to NPmary]

NPmary:

Thank you; I started on IL 11/2017. Wow, I guess it all comes out sideways for some of us. I do actually feel like I’m dying, too, sort of/sometimes—I usually tell the ONC that I feel like I’m 90!

Wow-we’ll congrats on being older; my biggest wish is I get to meet and hopefully watch my future grandchildren grow—I feel that’s hopeless because my oldest is 20 & I was 34 & 36 when I had my children. But you never know. I do sometimes daydream about a bunch of litter putter-patters running through my house, etc. though. Love being a mom & I hear being grandmom is even better.

[NPmary in reply to Bailey3266]

Hope you get to be a Gramm a. Mine call me Mo.

[Mindysooty]

Sending prayers love and positive vibes and hope that all goes well for you. The pains are likely to be heightened awareness - still real but brought on by stress but if you still have them afterwards you can investigate then. Big hugs 👐🙏 x

[kduck]

Thank you and I will. I usually get results few hours later but my doc went to Germany on vacay! I have a conference to attend next week for my job, but I have an appt Thursday 25th!

[Bailey3266 in reply to kduck]

Wow that’s prob adding to your worries/stress & pain levels to have to wait almost a week for results. Hang in there. 🙏😍