WBC lowest?

[ballmom22]

What is the lowest your WBC count and Neutrophils abs have been?

[Barbteeth]

Mine went below 1.0 when I started 125 mg Ibrance

Once dose was reduced to 100mg then the count stayed above 1.0.... my oncologist is happy with that

Barb xx

[Aimee95]

On Friday they were the lowest I have ever had even on lower Ibrance dose. Neutrophils .7 and WBC were 1.2. Repeat blood work yesterday bounced back to 1.2 neutrophils/ 3.1 WBC.

[Hidden]

Mine fall to 0.5 most cycles and once it was 0.3. I have been switched to 75mg Ibrance to see how they will react. I’m normally off three weeks each cycle instead of one.

[nstonerocks]

I’ve been on it almost 4 years and wbcs usually between 2+ and 4. This month 1. Not sure about neutrophils. I am on a once cycle break and feeling better.

[mariootsi in reply to nstonerocks]

Glad you are feeling better

[nstonerocks in reply to mariootsi]

Checking out realtor.com for beachfront condos!!! I think that would really boost my white count. Thanks for reaching out

[mariootsi in reply to nstonerocks]

Good luck in your search!!! That certainly will help your count. Lol

[mariootsi in reply to nstonerocks]

Ok. So I'm watching Caribbean Life on HGTV.Great properties on the water with pools. Unbelievable prices!

They just did episodes on Utila, Honduras and now Vieques near Puerto Rico! Fabulous!

[nstonerocks in reply to mariootsi]

Caribbean Life is fun to watch, and it's hard to beat life at the beach. But I wouldn't buy in a politically unstable area, and in my "condition," looking for top cancer care. I also wonder after a few months, would you get tired of the beach? Need something more? I am getting tired of working, but for now I feel trapped. I did tell my husband to get a financial planner, because at 65, and with this diagnosis, I'm feeling like not waking up at 5:30a every morning. It's hard when he's out of work. We need his salary to stay in our house. One foot in front of the other...

[mariootsi in reply to nstonerocks]

Just keep searching. You will find the right spot to live and you can work it so you can afford it.

You deserve to retire and enjoy life more.

I understand that medical care in these Caribbean locals would be an issue. But It just looks like paradise to me!

I know I just want to run away!

I know it's unrealistic.

[nstonerocks in reply to mariootsi]

If you want to read a really funny book about an American woman who relocated to Costa Rica “Happier Than Billionare” by Pisano. A real hoot.

[mariootsi in reply to nstonerocks]

I need a real hoot right about now. I'm going to pick it up!!! Thanks.

[Hidden in reply to nstonerocks]

That comment immediately boosted my counts, lol!

[SpongebobMom]

onc told me that anything above 1.0 is a-ok to stay the course with medication schedule.

lowest I've been (so far, knock on wood) is 1.3.

[nstonerocks in reply to SpongebobMom]

I felt so awful, my onc told me to take a month off. I am feeling better, not great. After 4 years I think a one month break won't affect treatment and is probably a good idea. I will resume next cycle. Don't like being on these meds, but they are keeping me alive. Sigh.

[ballmom22]

thanks so much for your responses. my Neutrophil is .7 and wbc is 1.7 - I have to take week off and decrease dosage to 100 when i start back. Dr told me my Neutrophil has to be at least 1 before I can start again.

[Hidden]

My ANCs are almost always 800/.8...they've gone as low as 500/.5. I've felt fine w/ this and have not been sick with anything (well, aside from the cancer...) over several years. In fact, early on, when they would come up low, I'd tell my doc "don't reduce my Ibrance, i'll get them back up". Mind you, with no rational plan in mind! But we've both come to trust that my body does A-OK between 500 and 1000. I've been on 125mg Ibrance for more than four years.

[Kathyquilts]

.6 and it wouldn’t rebound, so I’m on an extended break from Ibrance.

[ballmom22 in reply to Kathyquilts]

are you taking anything else instead?

[Kathyquilts in reply to ballmom22]

I get the Faslodex every 4 weeks. It’s similar to Letrozole. Ibrance works differently.

[ballmom22 in reply to Kathyquilts]

ok - yes, I have done Faslodex previously - just curious if there was an ibrance alternative 😊 - I hope Faslodex works well for you, it was good to me for a long time with little to no side effects

[Kathyquilts in reply to ballmom22]

I was on Letrozole for 6 years before it stopped working. The Faslodex is no problem.

[Terilyn12]

I have been on Ibrance and Letrozole (now replaced Letrozole with Faslodex) and my neu have been under 1.00 the entire time - 12 months. I stay around .4 but have been .2 many times- that’s the lowest. I have a hemotology oncologist and he watches really closely . I have to be careful but haven’t had any infections. I get labs weekly if .3 or less and every other week if over .3. I was 125 Ibrance for 10 months then moved to 100... but my neu stYed low e en at lower dose. My WBC stays around 1.6