I just wondered if anyone has normal tumor markers but pet scan found my Mets in the lumbar,sternum and pelvis. I'm 5 months into treatment and the labs still are negative for tumorarkers. . Has anyone had this situation.
Tumor markers negative, but Mets found - SHARE Metastatic ...
I’m going to say that is strange. Have you had a biopsy? I’m sure your oncologist knows but everyone I know has had a biopsy even though pet showed Mets. Of course my oncologist wanted to see what type I had to treat. I’m Her2 Negative, so obviously hormonal therapy. Plus if it’s just in bones that is better than like some who have liver, lung or brain. I would ask for a biopsy if you haven’t had one. Always stay one step ahead. Let us know.
I'm one of those people that tumor markers don't work at all. I was stage 4 for over a year before they found it. I hadn't had a scan in that time because my tumor markers were always low. When they found it because I was in so much pain my tumor marker was 10. I had it in some ribs, shoulders, spine and front of hip bones.
I’m sorry! Fortunately they are spot on for me. My chemo brought them down to 400. He does use them because Pet and Cat scans use so much radiation. I mean I get cat scans but not every 2-3 months. Mostly now because I’m just on Faslodex and no need. My blood work is fantastic so I gotta just see how I do on it.
Yes, my oncologist puts no weight on normal markers. Mine have never ever been out of the normal ranges or even close to the high end and yet I had a recurrence of new bone Mets after 26 months on Ibrance, Aromasin and Zometa.
Added Faslodex to the party and had more radiation to the new spots on my spine. New scans coming in September and feeling positive
ER+ HER2- with Bone Mets to skull, jaw, & spine (mostly spine). Tumor grew back on same side of chest wall where it was initially 17 years prior to recurring. I had a mastectomy/chemo/radiation and years later some reconstruction. Who would have ever thought it would come back in the same spot?
Found the Mets to my lower mandible before ever finding the lump behind my implant. Drugs have starved the lump into non existence for now but the spine activity seems to be the issue.
Faslodex has been great so far. Get another set on Wednesday. No idea if it’s doing anything but sure hoping so.