i joined this group to see how other folks cope with mbc. my wife has the condition.maybe we can learn something on here .wishing all you ladies godspeed.
bettys recovery.: i joined this group... - SHARE Metastatic ...
bettys recovery.
Written by
fredmassie
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Hey there, I’m sure I will sound like a broken record to other board members. But I was diagnosed January 31 after being stage 2 for 18 months. 46 yo for the MBC diagnosis. How I cope:
*support system. My husband, the Bible, some close friends.
*finding lots of positive stories to inspire me. Website “radical remission project “ and a book by Dr Andrew Weil called Spontaneous Healing.
*juicing and vitamin supplements make me feel empowered. And I feel good physically.
*walking or indoor exercise for 10-30 min per day.
*saw a hypnotherapist to confront and talk to MBC. I redefined its role in my life
*fall asleep to some hypnosis recordings 1-2 times per week. Google healing hypnosis YouTube
*vacation to Hawaii 60 days after diagnosis was incredible. I had booked it 75 days before. I actually forgot about MBC the majority of time I was there
*these ladies here help me. Sometimes just realizing I’m trying to help someone else feel better about this helps me. And I know I could come here for support too.
*read Psalm 23 daily
* an oncologist that you feel good about. They should be positive and their approach should feel good in your gut.
I think I’m forgetting something...but more and more is being done to bring focus to MBC. I try to view it more like diabetes where I’ll need medicine but I’ll be ok.
Cathy
Your a great writer... Is that your line of work?
Aww you’re sweet. Nope unless doing email all day counts?! I think some get the math gene or science gene. I always enjoyed writing and languages.
thanks for you words of encouragement.wishing you well.
I hope your wife is doing well. Everyone in this group has mbc. We help each other by listening on our bad days and being happy when someone gets a good test result. We ask each other about symptoms of meds we may also be taking. We try not to be negative. We try to keep each other going in a good direction. We will live a long life because we know when one medicine stops working there will be a new one. We try to get out every day travel take care of our family and selves. We welcome your wife to lean on us with her questions. Hope we can comfort her in some way.
Barbara
thanks barbara, i will keep that in mind.
Welcome! It's too bad you need to be here, but good that you found us! The first months after this diagnosis are often the hardest and most anxiety ridden. Times helps some, especially if the first treatments are helpful. Having family support means alot, too. I was diagnosed in March, 2004 with mets from the get-go and you would never guess that I have an advanced cancer if you saw me out and about. I once heard living with mbc as being like riding a big roller coaster, with a mask on! There sure are ups and downs, unexpected twists and turns. Alot of us end up using meds for anxiety, depression and/or sleep at some point in this crazy cancer experience. It messes with our brain chemicals. My sense of humor helps me alot. Someone mentioned listening to meditation audios--healthjourneys.com has great CDs and iPod downloads by a psychologist, Belleruth Naparstek. Listening to her Surgery CD changed things significantly for me--my blood pressure went from high to low when checking in for procedures after listening to it just a few times. And she has a wonderful calming voice. I hope your wife does really well with treatment and finds peace of mind with all of this cancer stuff soon, and you, too.
thanks for your kind words ,as of now we both are coping with this problem.hoping it will be a short journey to full recovery.a positive attitude helps a lot.
You do understand that once breast cancer has metastasized, it is generally not curable but is manageable and usually means continued treatment.
yes we are very aware of that fact.but we can only hope a cure is in the pipeline.fingers crossed!!
Don't think cure, but do think remission. I was in remission for 20 years with stage 3 BC ( and no drugs for 10 years) now I have a reoccurrence and I truly believe that I can go into remission again. People do it every day, and there is no reason that your wife cannot be one of them.
These ladies are great on this site and have been very helpful to me since December 2017 and this new diagnosis. Yes, I agree with others when I say, I was very upset and it seemed like a death sentence initially AND I was scared to death to take Ibrance. But, now that I am going on my fourth month on the pill, I am much more relaxed. I just got back from a week in Florida for vacation/sons graduation. I did not live cancer that week and it was great. So in a short while, if you go away a bit, it will help. I don't think as soon as you are diagnosed is the time to go away. I believe she needs a few months and some of the fear subsides.
thanks for your comments, hoping you have good news for your future.
Great to read your post, Fred! I have found this group so informative and encouraging. I'm sure you and your wife will both get so much feedback and encouragement! Welcome to both of you and hugs to your wife! XO
Fred, I am so happy and impressed that you have checked this out for your wife. You are a great husband! How old is your wife and do you have children? What ages, if so?
my wife is 78 yrs young, & we were not blessed with children but we both have many nieces & nephews to spoil.life is great.
