Ebsteen Bar: Has anyone had ebsteen bar... - SHARE Metastatic ...

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Ebsteen Bar

Artpk profile image
18 Replies

Has anyone had ebsteen bar while taking Ibrance and Faslodex?

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Artpk
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18 Replies
Partia profile image
Partia

I have never beard of that

Artpk profile image
Artpk in reply to Partia

It’s also called mono

blms profile image
blms in reply to Artpk

I do know what Ebsteen Bar is. my question is where are you on your Ibrance cycle and did you get a bad case of it and have to go off meds for an extended period of time. That must have sucked as you get so darn tired on the meds anyway and the virus can knock the pants off of you in any normal situation. How are you doing and what did oncologist say?

Artpk profile image
Artpk in reply to blms

I just took the first three cycle, then my blood count got so low, then I got Ebsteen Barr which I had two years ago. So I am not doing the Ibrance until I get over the Ebsteen Barr. The oncologist said that it’s not her expertise and I should see an infectious disease doctor. So right now just trying to get over this. I am really super tired but my blood count has went up. I haven’t made an appointment yet with the infectious disease doctor.

blms profile image
blms in reply to Artpk

Where do you live? Look for a Chinese doctor that was trsibed in mainland China fir help with mono and see an infectious guy soon

Artpk profile image
Artpk in reply to blms

I live in Plymouth, Michigan. Thanks for the information. I’ll see what I can find.

Partia profile image
Partia in reply to Artpk

Wow! I live in Canton!

Artpk profile image
Artpk in reply to Partia

You are right around the corner!

Artpk profile image
Artpk in reply to Partia

Where do you go for treatment?

Partia profile image
Partia in reply to Artpk

For real! University of Michigan Hospital.

Artpk profile image
Artpk in reply to Partia

Thanks, I need to go either there or Henry Ford. I heard they were both good.

blms profile image
blms in reply to Partia

Who do you see at Michigan, Dan Hayes, maybe??

Artpk profile image
Artpk in reply to blms

It’s dr. Ding in Canton. It’s a st. joes doctor.

blms profile image
blms in reply to Artpk

Actually, I wanted to know who Partia was seeing at U. of Michigan. I know Dr. Hayes who is head of breast cancer there in Ann Arbor.

Partia profile image
Partia in reply to blms

No I see Dr. SMERAGE and his PA Kelli Scheu. I love them..

blms profile image
blms

The Chinese doctors have things they can give you that will expedite healing

Artpk profile image
Artpk in reply to blms

That’s great news, thank you so much. I will surly check into it. I’m so glad for this site and people that are willing to help. I get so frustrated with the doctors I deal with, they don’t seem to care. Thanks again.

blms profile image
blms in reply to Artpk

Isn’t that the truth!!! And they all want to steal your power! It’s tough!! Plus ladies remember you need to drink. Lose to a gallon of water daily with Ibrance! Even says on Pfzier site