Anyone on ibrane?
Ibrane: Anyone on ibrane? - SHARE Metastatic ...
Ibrane
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marianne88
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Hi Marianne! This is JulSoul. I have been on Ibrance and Letrozole since the beginning of my treatment in January. First I was on 125 mg which was too strong. I was changed to 100 and things are working out. My last two PET Scans have looked great! For me the side effects seem to change around month to month, or the longer I stay on it. I have had some hair thinning, and loss of appetite. Some days I feel tired, but I push through it, but that is just me. I feel the side effects are minimal compared to what they could be and my treatment is working! Hope this is what you are looking for!
Hi. Thank you so much for responding. I have been on the fulvestrant shots and had radiation on my lower back the last 2 weeks. I’m exhausted all the time. Friday I will start Ibrance and will be getting zombeta shots every 3 months. Do you have any of those treatments? Where is your cancer?
I was diagnosed with Stage IV Metastatic Breast Cancerlast November. I had a clear 3 d mammogram 8 months prior. I went to the emergency room with severe back pain. Turned out L1 had fractured. So we found out in the emergency room that I had cancer and was being admitted. Shock of all shocks! First they thought I had multiple myeloma. Upon the biopsy of the fractured area I found out it was breast cancer. Originally the cancer was in every vertebrae, sacrum, 2 lymph nodes and something small in my lung. My treatment has definitely helped with the pain. I forgot to tell you that I also get an Exgeva shot once a month.
Wow you have had a lot. I was first diagnosed in 2012. I had chemo double mastectomy reconstruction and then 33 rads. I had stage 3 and then was clean for almost 6 years.y bone mets are in my iliac but know where else. I’m just scared Will my life be back to normal when I get going on meds. How do you feel?
Oh wow, a similar thing happened with me. My back surgery was July 28, found out the tumor removed from my spine was breast cancer. I have some cancer in my spine and ribs. Had some radiation done, on Femera, started Ibrance Oct 9. I will have an infusion shot done Oct 23, to help with my bones. Take care, everyone, self-care, positive outlook.
No, you have had a lot! I was too late for a mastectomy and infusion chemo, since it had already spread so much. I feel for you having gone through all of that and the damn beast is back! You will feel better. I now do pretty much what I used to. Just not as much in one day, slower and I have to be careful. I have let some things go, deciding on what I want to use my energy on. I have a huge yard which is my joy! I love to be out in the garden. I have had to ask for help out there, but that's ok. I am more tired and go to bed earlier. I do what my body says. The pain is managed by other meds. Wondering if you live in the area? I am in the south suburbs of Chicago.
Actually I am from Massachusetts but just came back from Chicago. My daughter ran the marathon on Sunday. I loved it. What a great city. I’m glad to hear I will be able to live again. Let’s please stay in touch. U sound so upbeat and I truly need that right now ❤️
Sounds wonderful. I am here when you need me!
Hi. I'm starting ibrance this week (waiting for insurance to accept it). But I already got my first faslodex shot. I was diagnosed with stage IV metastatic breast cancer to the bones in 2011.double mastectomy and 25 radiation sessions to the breast. I was on Xeloda (oral chemo) for 5 years when it stopped working so in January I went on a clinical trial (GTX-024). They require CAT scans for the clinical trial which showed everything stable. Yet I was having so much body pain so I insisted on having a pet scan. Sure enough it showed my cancer had progressed. So I immediately stopped the clinical trial. And now I'm about to start the Ibrance/faslodex combination. Along with monthly zometa which I've been getting from the very beginning ,6 years now. Still have body pain (mainly hips, thighs, lower back). Pain being managed with believe it or not Advil. It usually does the trick although just saw a pain management doctor and we tried one opioid which didn't work. Picking up a prescription today for another one. Advil supposedly messes up the stomach so trying to find something else.
This is my first reply so hopefully i didn't ramble. Lol
Hi. I don’t mind the shots so much having my 3 set today and starting Ibrance. Suppose to start zometa but I have been having some teeth issues so I haven’t started. Did you have a lot of side effects on zometa.
None at all. And I'm still on it monthly
Why u on them monthly. Where is your cancer?
Zometa is once a month. It goes in my port. It's is for bone strength. I have breast cancer metastasis to the bones
Wow every hospital is different. I have bone mets too but I only need infusion once every 3 months
I just started Ibrance also, on Oct 9. I am also on Femara. I feel a little tired but other than that ok. I will be on it for 21 days, 7 days off, then 21 days on, 7 days off, etc. Oct 23, I have an infusion to strengthen my bones. My guess is, by the third week I may feel it more but I guess everyone is different on how our bodies react. I wish everyone well. I'll check back in a week. Has anyone been on Ibrance long term?
Susie, I am starting my 7th month on Ibrance and letrozole. Bone mets were gone at 5 month PET scan. Great day! I am feeling good. My side effects are 3-4 hot flashes/day and exhausted by 9 or 10 at night.
Thank you Susan, for your information. I just started, feeling tired some which is very common. Hope all continues to go well 
I'll try to check in, in a week. Take care.
Hello, I started on Ibrance, am on Femera Oct. 9. I feel tired some but other than that very little side effects. I am praying and keeping my fingers crossed.
