Letrozle after lumpectomy for ducal cancer

[lynda1955]

Letrozle

Been taking letrozle since June last year. I am getting joint and limb pain especially in my legs. Could this be a side effect of medication. Thanks

[equavel]

It certainly could be the culprit!!!

[marybv]

Yes, I have heard that Letrozole can cause joint pain. Be sure to tell your doctor about it.

[lynda1955 in reply to marybv]

Went to Gp today and she is not convinced and would rather I stayed on letrozle and took pain killers.

[marybv in reply to lynda1955]

I facilitate a support group for women who take aromatase inhibitors and many participants who have experienced joint pain recommend accupuncture, a supplement called Solgar, and a supplement called Coenzyme Q10 (CoQ10). Be sure to check with your doctor before taking anything, but I hope that helps!

[Abshobha2709]

Hi even i have been on letrozal from last one year and I don't have any such side effects

[Scrapbooker]

I was on Letrozol since Anestrozole gave me carpo tunnel symptoms. Letrozole was so bad. Joint pains, fibromyalgia, insomnia, & many side effects. I went back on Anestrozole & then they had me try exes tame or something like that & it was even worse. Here I am again on anestrozole. I’d rather have numb fingers & bad hands than whole body & pain medication & side effects from it too. So so sorry you’re suffering from this medicine too. I know what you’re going through & it’s awful.

Scrapbooker

[lynda1955 in reply to Scrapbooker]

Thanks for your reply aches and pains can get me down. Only working part-time and have requested 4 to 4 1/2 hour shifts and not stood in one place as this aggravates my sore knees. We all have to just soldier on, know there are people out there in a worst position than me.

[Scrapbooker in reply to lynda1955]

Lynda I forgot to tell you it was suggested for me to take tumeric to help with inflammation which helps with joint pain. I tried & does help. Also reading on joint pain that CoQ10 helps. I started that too but just for few days so not sure about it yet. Just thought you would be interested in this information.

Scrapbooker

[chinastar]

Started with Anestrozole and the numbness and pain in my hands and feet were horrible. Switched to Letrozol which caused severe joint pain. Was then switched to Exmastaine (not sure of spelling). Still had joint pain, but added stiffness which made it hard for me to get out of bed in the morning. All 3 give me hot flashes, night sweats, and insomnia. Have been off everything for 3 weeks and feel much better. starting Tamoxifin on Thursday. Hopefully I will be able to tolerate it. But not counting on it. Felt better every time they switched me, but symptoms come back. Dr. told me that the Tamoxifin is my last choice. This has been the longest 3 years of my life.

[ShellyLKB in reply to chinastar]

I had BAD times with anastrazole and exemesthane. I am on TAMOXIFEN. I do get muscle cramps but a WALK IN THE PARK compared to what I went through with the aromatase inhibitors. AND! tamoxifen does not dry out my vagina and vulva as much. Taking a shower burned while I was on those other two drugs.

I tried, I felt like I was 99 years old on them.

This having been said EVERY WOMAN IS DIFFERENT. But there are always alternative meds. The doctors love anastrazole, letrozole, exemesthane because the percentages are slightly better.

As I said, I can only tolerate the tamoxifen and, given that breast cancer is "curable" but we are never "cured", I'd rather wait for the other shoe to drop while able to run and do pilates and row, etc.