Who posted about financial aid for Ne... - Restless Legs Syn...

Restless Legs Syndrome

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Who posted about financial aid for Neupro? I can't find the post & my $50/month 2012 copay has gone to $382 for 2013. HELP PLEASE!

CathyS profile image
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CathyS
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19 Replies

Ithink you would need Nightdancer to help as she is USA based :)

CathyS profile image
CathyS

Thanks tallua. I will patiently await with fingers crossed. Right now I'd take help from ANY country/planet/universe! :-)

mmm66 profile image
mmm66

I believe I posted info. Go to. neupro.com/parkinsons-disea...

Or goggle: neupro patient savings program

Goog Luck

nightdancer profile image
nightdancer in reply tommm66

Yes, every drug company has a :"patient hardship" program".

CathyS profile image
CathyS in reply tommm66

Thanks so much! And if it was you who in the same post suggested rubbing alcohol & cream to keep the skin problems under control, thanks for that too :-) I still itch like a maniac, but less than before with those :-)

mmm66 profile image
mmm66

Don't know why the whole address didn't appear above. I think if you copy the address, the whole address shows up.

Good Luck

nightdancer profile image
nightdancer

Cathy are you in the US?? Oh yes, I can help you. Do you want to do emails or private msgs, since it will be a long session of questions and answers, so I can tell you where to go for help. The very FIRST place to check is with the drug company that makes Neupro. Every drug company has a program and your doc has to help. I know about all the crap that is going on over here. The FDA has lost it's mind, Medicaid and Medicare (are you on either?) have also lost their minds, not covering THREE meds at all that I have taken for ten yrs. I have spent all week dealing with this, one reason I have felt "out of sorts" this week. My sister's migraine meds have been taken off the list, but there are hardship requests that can be made to the drug company to start with. If you qualify for their program (one reason I have a lot of questions) they send your meds to your doctor's office and he gives them to you. so, YES, I CAN help!!! ;) This is what I do every day with my own support groups, so if you send me a private msg and we can exchange emails and that will make it more convenient to send information, ok?? Don't freak out, we can fix it, most likely. My sister's co-pays went up to 157.00 on a couple meds, too. I am on permanent disability and am well schooled on that, also. My lawyer wanted to hire me to help people fill out paperwork after my claim went thu in less than 5 months, which is unheard of, and I did all his work for him. He reduced his fee dramatically. I just needed to use a lawyer's name and have one ready in case I got denied. so, whatever kind of insurance you have, we can probably do a "work around". How long have you been on Neupro? Also, my support groups are all US based, and may be more helpful for you at times. ;)

mmm66 profile image
mmm66 in reply tonightdancer

Nightdancer, are you in the US? I am and on Medicare and the neupro program I showed above is not for "hardship" cases. If you are "hardship" and on medicaid or such, I think you may not be covered. Regular insurance and/or medicard people do qualify for the program I mentioned. Please do not think you need a lawyer to get this. I am presuming you are in the US, with my comments.

nightdancer profile image
nightdancer in reply tommm66

I was referring to getting a lwyer for disability, not the hardship programs. I said that the doctor contacts the drug company, they sen the meds to his/her office and then they distribute it to you. sorry for any misunderstanding there. :) Yes, I am in the US, and know my way around the disability program, unfortunately. It is easier if one gets a lawyer the first time one applies, instead of witing til you are denied before getting one, that's all. ;)

mmm66 profile image
mmm66 in reply tonightdancer

I was just trying to say you go through the website and get a card; dr is not involved other than for the prescription. This is for the discounted med-neupro

boboblu profile image
boboblu in reply tonightdancer

Nightdancer, thanks for becoming so knowledgeable on these cost-insurance issues. You are a godsend to the rest of us. I have a question about the "hardship" programs you say every drug company has. Does the drug co. for Neupro have one. A nurse at my neuro's office supposedly set me up for the $10 savings card for a year but I don't qualify because I am on Medicare so I had to quit taking Neupro. I took up to the 6 mg patch for 10 wks but it didn't help me at all. Can't afford the Mediicare cost. Going to try homeopathy for PD but guess I should find out what I really have first as I've taken 6 PD pills + Propanolol (which is supposed to help suppress tremors but doesn't suppress them for me). C-L increases the symptoms. Now I suddenly have gall stones and have to have it removed due to scar tissue from inflammation one doctor says. I am a 71-yr young female living in the U.S. and am really tired of the medical system--what I mean is not the med. system per se but the docs (especially those in small cities where I am temporarily stuck now). Lots of the doc's I've seen don't listen to you (lots of people comment that on doctor review boards) and don't really seem to care if you are in pain 24/7 or not. I am not taking any PD pill right now and am not worse. Trying to figure out a better step quickly. I am only asking you if Neupro has a hardship program because one nurse in the neuro's office is always telling me lies. I think she thinks she's the doctor. And I am exasperated with this no-cure disease and FDA drugs that aren't worth the cost. Thanks.

Niffie70 profile image
Niffie70 in reply tonightdancer

I have BCBS but the Neupro is $623 WITH the discount card! I’m unemployed and we can’t afford $100/mo let all be $622. Ideas?!

CathyS profile image
CathyS

Feeling like MAYBE there's hope but I don't know how to send a PM on this site :-( My e-mail is mcws@juno.com. Heading out to take my Mom to church now (hmmmmm wonder if that will help!) but I will be checking in later tonite. Thank you so much for giving me hope!

Cathy, you can click on nightdancer's picture and it will take you to her profile, you will see on the left hand side, it says send a message, click on that and then you can send your message to nightdancer..

CathyS profile image
CathyS

Thanks Elisse!

nightdancer profile image
nightdancer

when you sign in , look at the top of the page and you will see beside "mesages" a number that tell you how many msgs you have. Sent you one, ok? ;)

thedragon profile image
thedragon

I hope you get sorted....But all I can say is despite all its faults Thank God for the NHS!

landman profile image
landman

Cathy,

I was the one who posted financial help, alcohol & creme. I am glad it helped.

Go to WWW.Neupro.com and get your discount card.

Also you can appeal to insurance company to cover and lower drug costs. Just ask them. If you get denied, appeal to a different agent. Do not take no for an answer. If that does not work change insurance companies, when you can.

CathyS profile image
CathyS in reply tolandman

The "discount" card would actually end up costing me more! I get $65 off a one month supply at $382, or I can buy a 3 month supply for $900. So grateful for my college math :-) The drug store did agree to get it down to $782. Insurance no help since I haven't met my deductible yet. I can't plead "poverty", but can plead "kids in college". Guess I'll just have to suck it up. Thanks for your input. Going through other medical issues now so I am sadly sure I'll meet that deductible soon :-(

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