Today - 3rd September 2012, is the last day of the School Summer Holidays for 1 of my sons, and I havnt got the words to describe how so happy, relieved, impatient I feel right now.
It has certainly been the most horrible and lengthy summer break ive ever been thru.
The reasons being are:-
1/ My 12 yr old son has severe ADHD, ODD, Dyslexia, Learning Difficulties and severe behavioural problems and is immense hard work.
2/ I have major depression, BPD and anxiety issues
3/ My ex has been playing mind games with me and an ex from 3 yrs ago wanted to rekindle are relationship, I was so happy, then without warning and so suddenly he ended it by txt and now i cant get hold him.
4/ had a fight with NHS and the mental team, getting nowhere.
and lots of other bits and bobs.
I have managed to get some support for my son over the holiday, which has been so appreciated.
funny you know, today Ive been organised or once in my life.
So here ends todays blog ......................smiling
Written by
cheekipixi
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Oh heavens what a time you are going through. Thank goodness school is now back and you can have some well earned time for yourself to get your head around what is going on in your life. Lets hope there is a corner for you to turn very soon where things will look much better. xx
Im blushing and feeling really silly at the moment, I cannot believe sum1 has read my blog, lol never done 1 before and didnt really think people read them, not knowing a thing about these blogs, thank you though for commenting.
I just wanted to say that I have a 10 year old son with mild ADHD, ODD and Aspergers. We are at the start of the process as he's only recently been diagnosed which also means we really haven't been given any help yet with how to manage him. I completely sympathise with what you said. I feel bad about how I feel about him sometimes but much that I love him (I think!) he is hard to love some days! He and his sister aged 8 have argued and fought thro the holiday and I really don't enjoy being a mum at the moment,
I'm assuming that you have RLS too as you are on this forum and for me, coping with my horror children after a very poor night is incredibly hard. It sounds as if you are feeling slightly more up beat now that your kids are back at school. Mine go back tomo and will be celebrating after dropping them off! Just hope I can get them to school in time as I've not got up that early for a while!
oh you poor thing, I do feel for you, this illness is so horrible, when its ur child its worse, I have had a 10/11 yr fight to access services for my son, trying to look at problems that may lay ahead so that they can be nipped in the bud, its impossible isnt it.
I noticed sumthing no quite rite with my son when he was only 18nths old, no body listened, he wouldnt walk he ran, he wudnt talk he wud shout, 2 hrs sleep a night was brillliant, at 2 yrs plus he was expelled from his creche, 3 and half was suspended from school, at 7yrs old he attended his 2nd primary school, at 9yrs old he was on his 2rd primary school.
He was assessed for over 3yrs by the ADHD team, who found he didnt meet the criteria for ADHD, file closed with no hint of what I cud do next. I wrote to the Dr and aired my views and told her that I had studied the DSM and I thought he met with every1. 2nd opinion was offered, I jumped at this, and in 35 mins the psychiatrist diagnosed him as having combined ADHD, ODD, over time it became apparent he also had learning difficulties, dyslexia and severe behavioural problems, he cannot process his thoughts properly and has many anxiety issues. At 6 yrs old he started on Methylphenadte and respirodone. Today at 12 yrs old he takes 30mg of ritalin 4 times a day, 120 mg in total per day, its awful but he so desperately needs it, I think he also needs some sort of therapy, mainly due to the way he has been treated by these 'so called proffessionals' over the years, this has always been refused, now he attends a brilliant specialised school and now he gets this plus loads of other things.
This type of illness I think should be dealt with as early as possible, as I feel if left then adulthood could turn out so different. I have hit a brick wall where ever I been for help, even to the point were I was blamed for my son being the way he was, and so all my children were placed on the at risk register. At this point I just wanted to throw the towel in but couldnt as it had become my life making sure my son had a decent future. I proved Social Services wrong in everything until finaly last year they finaly closed the file, I woudnt be frightened into silence and they gave up. The Education department was another fight, fobbing me off with a lot of rubbish as to why my son shouldnt have a statement, he has it now, but it took 5yrs of fighting. At 1 point there was no school in the county that wud educate him, and all they were willing to provide was 5hrs a WEEK, 1 hr a day of home schooling, big mistake on their part ad I won and my son now has a statement. The police I have fought with, not listening to me or my son when he was being bullied by neighbours and thier children, at 1 point they were actually going to give my son a warning. Got a top solicitor and things are now very different.
It has been such a hard slog but worth every move, I dont think my son will ever be totally independant in adulthood, but at least he will remember that he has had the best help that he could get.............eventually, and he can look back on at some happy times during his childhood.
I will always worry about what happens to him when I am no longer here, so until I pop off I will try and get things organised for that event.
hard to say I know, but you should never feel bad about you how you feel sumtimes, you should give urself a huge pat on the back, ur son is 10yrs old, uve had no help yet you still have him at home, uve not given up on him, which I know a lot of parents do do, because their job of being a parent is too hard, having proffessiionals trying to grind you down also, its all not right at all. be proud of yourself x
so, are you dealing with RLS and/or sleep disorders with the kids or yourself? My nephew is autistic and schizophrenic, so I know how hard all of that can be. Thank goodness for school. You will have time for yourself. I have several parents with kids who have RLS and other sleep and learning issues. It is a fulltime job!
The main comment I would make, which has already been mentioned, is that this is a forum for RLS and, while we're sympathetic to the problems you have posted, unless RLS is also one of your problems you would probably be better served by looking at other forums for the specific problems you detail. That's not to say we're not sympathetic; it's more that advice from people with experience of those conditions on those specialist forums would serve you better.
However, assuming that you do also suffer from RLS, perhaps sharing how RLS impacts on your life, on top of everything you have to cope with, would help you as I'm sure we could all chip in with something helpful.
Just to let you know, Im moving across to another forum with this, didnt know my way around here thats why ive ended up on here even though i do have RLS
personally I think that was a little harsh and could have been handled more gently. I have had to go through some things I think we all have one way or another plus this very debilitating disease and it is not surprising that people feel bewildered and downright frustrated trying to cope.I do hope you find some help and support which goes along way to alleviate the doubts and worries inherent in bringing up a child you describe.I am somewhat out of touch to some extent with current language usage.I am also rather ignorant as to where you could seek help because I am sure it is out there if you had the key words.I will be thinking of you and hope you feel more rested .A good nights sleep can work wonders.25 Nov to cheekiepixie.
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I have several parents with kids who have RLS and other sleep and learning issues. It is a fulltime job!
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