I've had RLS since I was a kid but it went away for a few years. However I also suffer from Migraines and in a bid for my neurologist to prove that it was all MOH and in my head, he stopped me cold turkey on Tramadol. Which brought the RLS back with a vengeance, 2 years later, and going back on Tramadol for a year of that until it just wasn't working any more at all and started triggering migraines, I'm off it again...
The RLS is worse then it ever was before, it doesn't stay in my legs and it doesn't stay at night time. I rarely have a time now where I'm not in pain and all the doctors have given me so far is Methacarbonol and Baclofen (Naproxen did nothing, no shocker there, I took it for Migraines ages ago).
I take Pregabilin (Lyrica) 75mg, twice a day and Fluoxitine 20mg once a day for the Hemiplegic migraines but these do nothing for the pain.
I've passed out from exhaustion several times now, scratched myself without realising it trying to get the pain away till I've burst blood vessels all the way up my leg or arms...
I have a doctors appointment on Friday, I want to take something to him other than my nearly breaking down crying in the GP office begging them to stop me being in pain.
So tips would be ace! I'm used to battling the Migraine cause as its been my pain since I was 13... oddly RLS is now taking over and I'm out of my depth with it >.<
If its any help, I'm also Hypermobile