Novice to RLS: Hello All!, new to rls... - Restless Legs Syn...

Restless Legs Syndrome

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Novice to RLS

Mumoftwin17 profile image
12 Replies

Hello All!, new to rls diagnosed 6months ago!! Currently taking Ropinerole, which worked well to begin with .......Question :- anyone know if I can take Antihisthamins with Ropinerole.....have developed very sensitive skin (marks really easily! and itchy!!) Dont wanna go back to Doc (he thinks Im nuts now, as ive spent so much time there!!!)....

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Mumoftwin17
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12 Replies

hi, and sorry you had to join us, as for anti histamines, they can make RLS worse, but not all of them, its a matter of finding one to suit you, i have Betahistine, for Menieres Disease, and it doesnt affect me, so im lucky, but im sure, someone else has a better idea than me, and they well see this and give you a bit more advice

jean

Mumoftwin17 profile image
Mumoftwin17 in reply to

Thanks for your info.......look forward to hearing more ideas!!!...thanks

....wendy..x

i think its anything with pseudoephedrine, thats the worse, and benadryls not good either, but hang in and you will get more info Wendy.

jean

Hi, Mumoftwin, if you look at the questions, someone has asked about antihisthamines. Nightdancer has left a comment on what is the best to take and what to avoid taking...Very good info from someone who has great knowledge of RLS and medication to take which are ok and which are not.

Also as i havent really used Ropinerole, i am wondering if your skin reaction is a normal one to that med.

Maybe someone who takes Ropinerole will know the answer to that aswell..

Mumoftwin17 profile image
Mumoftwin17 in reply to

Thanks for replying .......keep you posted!!!

nightdancer profile image
nightdancer

any antihistamine that has Diphenhydramine (main ingredient in Benedryl and othe antihistimines and over the counter sleep meds) And, the pseudoephedrine is like speed. These wll make your RLS worse almost for sure. Look at the treatment page on rlshelp.org I take prescription Allegra, and no issues with RLS. You can take antihistimines with Ropinirole, but make sure they are not ones that will aggravate your RLS. If your doctor thinks you are nuts, then maybe you need a new doctor or a referral to a neurologist.

Mumoftwin17 profile image
Mumoftwin17 in reply tonightdancer

Thanks for the info.......keep you posted !!

Hi, well i can only speak for myself, but i took Ropinerole, and i never had any rashes, that just a personal experience though

jean

Mumoftwin17 profile image
Mumoftwin17 in reply to

Hey Jean,......thanks for the info......went to see gp but alas they had a massive power failure......couldnt make an appointment!!!!!!!!!!......what a system eh!...(what happened to good ol pen n paper!!!!!) will try again tomorrow!!.........Anyhow thanks for your input ...will keep you posted!!

wendy..

Hi

I took Roppinerole too although only worked for me for 5 days carried on taking for a month just to see if they'd kick in again (didn't) but no rash for me just made me go to the loo more stopped taking after that month didn't work ,guess everyone's different like anything can have an allergy to anything ,

Thankfully never had to use antihis..., hope you get on with the Dr all of mine apart from one just sit and say Eh! what's RLS try getting in to see the one that does know never there hmm... :( , aye...what ever happened to pen and paper like folk forgotten how to use them lol ,

good luck hope they sort you

sal

Mumoftwin17 profile image
Mumoftwin17

Thanks for replying........will keep you posted have to wait a week to see Dr!!.......................Meanwhile trying to enjoy the sunshine especially as Im chronically short of Vitamin D.........lol !!...it'll prob rain now Ive said that!!.........................wend x

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