Hello and sorry you like me are on this site as I know how much you are suffering.
My RLS started about 10 years ago but if I think back to childhood it was there then and called growing pains (All 5 feet of them).
I am on 2mg of Ropinerole but it is now not working. For the last 2 years I have not slept more than 3 hours in one go unless I took a Tramodol with the Ropinerole.
I have heard that some people have been 'cured' by having tests and treatment for leg viens. I think but am not sure the test is called a Doplar test. The tops of my legs are very hot and below the knee like ice even now we spend the Winters in Lanzarote.
RLS runs my life, have to double medication to fly just for 4 hours, cannot go to the cinema, to dinner, on a bus (trains ok can walk around) car journeys but have to stop but then I am talking to the converted.
How do you all cope??????
Rant over thanks for 'listening'