Off pramipexole but...

[Jamspoon73]

For 30+ years since a serious lumbar injury ive been on pregabalin and pramipexole. With life-changing wisdom from this site taken seriously by my GP, ive gone from 100mg pregabalin and .27mg pramipexole to 200mg and zero over the course of 10 weeks. My RLS has subsided dramatically, but my bedtime 16/1000 cocodamol dose now has to be supplemented with another dose 4 hours later because i'm woken by lumbar pain that tossing and turning doesn't reduce. Often the only real antidote is going for a 20 min walk in my pyjamas at 2am. A bit weird. Any wisdom from others gratefully received.

[SueJohnson]

You are still suffering from withdrawal from pramipexole. It will get better.

[Matrix in reply to SueJohnson]

Sue , I have been withdrawing from an opiate it’s been four weeks and the pain in my lower back is unbearable , in the day I can manage by walking and moving more . I haven’t slept for weeks maybe getting to sleep 6 or 7 am and getting up at night . Do you think I could be still in Withdrawal . I have been on them 35 years . Any advice would be wonderful . 🤗

[SueJohnson in reply to Matrix]

Which opioid? What dose? When you say it's been 4 weeks do you mean you have been off it for 4 weeks? How long did you spend withdrawing from it? Why are you withdrawing from it? Were you taking it for RLS?

[Matrix in reply to SueJohnson]

Sue DHC continuous 60mg x4 daily I started to withdraw from September until 4 weeks ago . Ever since I have been I. Tremendous pain with restless legs and severe lower back pain which is unbearable .I can’t sleep sometimes it’s 6-7 am before I get some sleep not for long . though . I fight every night not to go down and get some of the meds but I don’t . Xx

[SueJohnson in reply to Matrix]

I would check with your doctor. Withdrawing can cause pain and certainly can make your RLS worse since it was obviously controlling it. Again why were you withdrawing from it?

[Matrix]

oh I forgot we are hoping to go and live in Spain and they don’t do my particular opiates there. So house on market ..🤗🤗

[SueJohnson in reply to Matrix]

That's not true. There is Nuria Caballol a Neurologist at a public hospital called "Hospital Moises Broggi" in Barcelona who will prescribe buprenorphine and knows not up to date and willing to trust Anthas knowledge rec by Anthas.

[Matrix in reply to SueJohnson]

We are not going to Barcelona and we have spoken to the Chemist over there and she says they don’t subscribe that one . 🤗

[SueJohnson in reply to Matrix]

It was just to show that they do prescribe opioids. Perhaps they have different prescribing guidelines in different areas.

[Matrix]

I didn’t say they don’t prescribe opiates because I know they do . Just not mine. .

[SueJohnson in reply to Matrix]

OK - now I understand.

[Matrix in reply to SueJohnson]

That’s ok thanks for your help.🤗