Ezetimibe

[Pippins2]

I was this med due to the statin meds worsening my RLS This will be my first and final attempt with it my legs are off the scale

[Madlegs1]

Oh,Pippins-- I do hope this will work out for you.

It's so scary to be at the end of your tether with medications.

Sending warm hugs to you💚💚💚💚☘️☘️

[Pippins2 in reply to Madlegs1]

Hi Madlegs it's unbelievable how much RLS has to be a factor on what we can and can't have .Think I am out of options for cholesterol lowering meds now

[HelloNewYork in reply to Pippins2]

I take Crestor. Is it known for worsening RLS symptoms?

[SueJohnson in reply to HelloNewYork]

Yes - it is a statin. See my reply to Pippins below for safe alternatives.

[Niewiem in reply to Madlegs1]

it is never the end, there are always options.......

[Joolsg]

Fingers crossed it helps Pipps.

[Ruffabug in reply to Joolsg]

Hi Joolsg, we haven’t known each other but I am Ruth’s (Ruffabug) husband and have to say that Ruth passed away on Christmas Day, peacefully in the local hospice. Despite all her concerns the RLS problems were controlled to the end with the 6mg rotigotine 24hr patch and opioids I V once she could not swallow the Ropinerole any more. I know this forum was a blessing for her and I am grateful to you all for yr helpful comment and encouragement- Ruth was a brave lady, I hope you all can find that bravery.

[Joolsg in reply to Ruffabug]

I am so, so sorry to hear that sad news. Thank you for letting me know.I am so pleased to hear that her RLS was controlled at the end. She had enough to bear.

Ruth was a lovely lady and I had enjoyed chatting to her on here over the years. She was indeed very brave.

I hope you and your family can find some comfort in knowing Ruth was free of pain.

My thoughts are with you and your family.

Jools x

[Pippins2 in reply to Ruffabug]

I am very sorry to hear of Ruth's passing and kind of you to let us know at this difficult time

[SueJohnson in reply to Ruffabug]

I am glad it was peaceful.

[Pippins2 in reply to Joolsg]

It was the Statin alternative so think.i am out of options for cholesterol lowing meds

[SueJohnson in reply to Pippins2]

There are other options if it doesn't work. I may have given this to you before :

Nexlizet (Nustendi) is a cholesterol lowering drug that is not a statin, but I don’t know if it exacerbates RLS symptoms. Ezetimibe (Zetia) reduces cholesterol although it doesn't reduce cholesterol as fast as the statins, but according to Chris Columbus it didn't trigger his RLS. And then there are Triglide (Fenofibrate, Fibricor, Lipantil, Lipofen, Supralip) and Bezafibrate (Bezalip) which are not statins which seem safe. You might want to discuss these with your doctor. A more difficult way to reduce cholesterol is to go vegan. My husband lowered his cholesterol from 221 to 131 this way.

[Pippins2 in reply to SueJohnson]

Sue Johnson yes unfortunately just one pill of the Ezetimibe yesterday is still affecting my legs today but apparently it has a long half life .I will ask about the Triglide and Bezabifrate.Thankyou

[SueJohnson in reply to Pippins2]

Another possibility is Cholestagel . It's not expensive.

[DicCarlson]

You might try repatha for cholesterol control (2x month injection). It is very expensive, insurance in the USA does cover it. No idea if it will affect RLS. I take a gaggle of supplements to lower cholesterol and triglycerides. They are Alma, Pantethine, Berberine, Nattokinase, and switching to a mostly vegetarian diet. If your cholesterol is for primary prevention (meaning you haven't had a cardiac episode), you should try diet interventions first. A new high profile study is suggesting that many people may not need statins at all.

healthline.com/health-news/...

[Pippins2 in reply to DicCarlson]

Thankyou for the information very interesting I am trying to improve my diet annd I need to loose some weight which should help .I am in the UK but if the injections are very expensive there won't be a chance of getting them on the NHS but I will take a look at your supplements

[Pippins2 in reply to DicCarlson]

Yes its prevention no known heart problems