Is it possible to wake up with augmentation symptoms and for them to last all day till my Ropinirole kicks in at night? I am utterly exhausted, can’t sit down for longer than a few minutes before I need to get up and move about. I had my 4th spinal fusion surgery in September and was convinced these nerve type pains were down to that but even tho surgery was successful they are still there driving me mad. I already take Pregabalin 150mg twice a day prescribed for nerve pain 12 months ago but am utterly confused as to which problems are due to my back and which are from the augmentation. I have an appointment with my GP on Wednesday and need some advice please , feel like I’m losing my mind! (Currently take 3mg Ropinirole at night)
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Bluejan
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It won't help until you're off Ropinirole.Sadly, until you get off dopamine agonists, adding other meds simply masks the increased RLS for a short time. The D1 dopamine receptors are up regulated and become hyper excited. That's what causes the daytime symptoms and the increased severity.
I was in denial for about 4 years. I would sleep all night once I took my Ropinirole. But I couldn't sit in car or watch TV.
Getting off Ropinirole stopped all that.
The co dydramol will help as you reduce.
Get normal release Ropinirole in 2mg and 4x 0.25mg doses. Explain to pharmacy that you need the smaller dose pills to start reducing Ropinirole.
Drop 0.25mg every 2 weeks. Symptoms will flare up at each reduction so take the co dyramol.
And read all the posts from the last few days. You'll see it's very, very common.
Great advice, can’t thank you enough. I’m due to start back at work next week and dreading trying to do the job with little sleep and achy sore jumpy legs all day.
As you're in Merseyside, avoid the Walton Centre as they still prescribe dopamine agonists and will probably try to switch you from Ropinirole to another dopamine agonist. That will just prolong the agony.If you can see a specialist privately (as waiting lists are around a year) see Dr Chris Murphy at Salford hospital. He is familiar with augmentation and will prescribe iron infusions and low dose opioids if necessary.
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