Massachusetts Opioid Register - Restless Legs Syn...

Restless Legs Syndrome

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Massachusetts Opioid Register

Joolsg profile image
14 Replies

I've just completed my 6 monthly survey for Dr John Winkelman's Massachusetts Opioid register. It is now in its 5th year and, so far, over 93.6% of the original 500 participants are still filling out the survey.

My RLS score is confirmed at 0/40. No RLS symptoms at all in the past month.

Hopefully, this information will help persuade health authorities and Governments that low dose opioids are safe, highly effective and are not causing addiction or tolerance.

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Joolsg profile image
Joolsg
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14 Replies
smilingjane profile image
smilingjane

Thanks for passing that on Jools.Good to hear 😊

Kakally profile image
Kakally

👍👍👍👍👍👍❤️

Bumble34 profile image
Bumble34

I do of course share your wish, but I fear that the Pendulum is still swinging the wrong way as regards Opioid prescribing as Shumbah hints at in an earlier post.

Joolsg profile image
Joolsg in reply toBumble34

Indeed. The opioid bias is strong.Buprenorphine is almost impossible to get here in the UK.

Typicallygaslit profile image
Typicallygaslit in reply toJoolsg

Buprenorphine is the only opioid I’ve even tolerated so far. Not well by any means, but still enough to make it worth it and better than anything else. I’m grateful.

HipHop1972 profile image
HipHop1972

well done Joolsg that’s great.

Mongolia2020 profile image
Mongolia2020

that’s great news. It will help us here in New Zealand.

Madlegs1 profile image
Madlegs1

Good for you!

I haven't got mine yet!

Do they all go out at the same time?

Joolsg profile image
Joolsg in reply toMadlegs1

They should do. Mine arrived at about 6pm. Maybe they take a few days to send to all 500 participants, rather than send all at once ( to allow time to review & collate replies).

LotteM profile image
LotteM in reply toMadlegs1

I received - and filled out - mine already over a week ago.

Madlegs1 profile image
Madlegs1 in reply toLotteM

Ok. I see I did one on march 29.??

LotteM profile image
LotteM in reply toMadlegs1

I checked. Mine was also around that time. Time flies….

We get a questionnaire once every 6 months, correct?

Joolsg profile image
Joolsg in reply toLotteM

Yes. Once every 6 months. Clearly they stagger the questionnaires. I know there's just John Winkelman and one assistant. But his previous assistants have moved on to start medical degrees.

That assistant will presumably be collating the 500 responses and preparing the yearly report for publucation.

Jumpey profile image
Jumpey

Thanks for all you do.

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