I've just completed my 6 monthly survey for Dr John Winkelman's Massachusetts Opioid register. It is now in its 5th year and, so far, over 93.6% of the original 500 participants are still filling out the survey.
My RLS score is confirmed at 0/40. No RLS symptoms at all in the past month.
Hopefully, this information will help persuade health authorities and Governments that low dose opioids are safe, highly effective and are not causing addiction or tolerance.
Thanks for passing that on Jools.Good to hear 😊
👍👍👍👍👍👍❤️
I do of course share your wish, but I fear that the Pendulum is still swinging the wrong way as regards Opioid prescribing as Shumbah hints at in an earlier post.
Indeed. The opioid bias is strong.Buprenorphine is almost impossible to get here in the UK.
Buprenorphine is the only opioid I’ve even tolerated so far. Not well by any means, but still enough to make it worth it and better than anything else. I’m grateful.
well done Joolsg that’s great.
that’s great news. It will help us here in New Zealand.
Good for you!
I haven't got mine yet!
Do they all go out at the same time?
They should do. Mine arrived at about 6pm. Maybe they take a few days to send to all 500 participants, rather than send all at once ( to allow time to review & collate replies).
I received - and filled out - mine already over a week ago.
Ok. I see I did one on march 29.??
I checked. Mine was also around that time. Time flies….
We get a questionnaire once every 6 months, correct?
Yes. Once every 6 months. Clearly they stagger the questionnaires. I know there's just John Winkelman and one assistant. But his previous assistants have moved on to start medical degrees.
That assistant will presumably be collating the 500 responses and preparing the yearly report for publucation.
Thanks for all you do.
Opioids 
Dangers of Opioids for treatment of RLS
