Please send personal stories (to be u... - Restless Legs Syn...

Restless Legs Syndrome

21,483 members15,160 posts

Please send personal stories (to be used anonymously) in ~ less than 300 words about the desperation you have suffered with your RLS…

Kakally profile image
12 Replies

Please would you kindly send personal stories in ~ less than 300 words about the desperation you or anyone has suffered with their RLS or the poor management from doctors.

I am writing a book about the horror that is bad RLS and it’s poor treatment, and probably worse horror that is augmentation !The stories will all be anonymous or initialled if you want…Thank you… I am trying, as we all are, to get recognition of the disorder and need for education of medical personnel.

Written by
Kakally profile image
Kakally
To view profiles and participate in discussions please or .
12 Replies
Joolsg profile image
Joolsg

Do you want the stories sent by private message so you can use names or just anonymously on here?

Kakally profile image
Kakally in reply to Joolsg

I guess private messaging may give people more confidence to write truly how they feel. I don’t mind though..

Joolsg profile image
Joolsg in reply to Kakally

Noted. I'll start work.

Kakally profile image
Kakally

Thanks very much Joolsg 👍

RLSLearner profile image
RLSLearner

good work, will be important/useful

Kakally profile image
Kakally in reply to RLSLearner

I hope so…. 🤞

Thank you

Nightwalker999 profile image
Nightwalker999

Hi, this is so good, I'll send my experience please send your email. Thank you X

Kakally profile image
Kakally in reply to Nightwalker999

Hi. Thank you Nightwalker 999. It will be very helpful to read your experiences.

Can you please private message me on Health Unlocked as my partner doesn’t like me giving out our joint email address. Sorry and thank you very much.

Best wishes

Kaarina profile image
KaarinaAdministrator in reply to Kakally

Thank you kakally. 👍Using private messaging for exchanging email addresses is perfectly fine. Email addresses provided in forum postings will be deleted.

Nanpat profile image
Nanpat

I am happy to do one, how do I private msg you here?

Kakally profile image
Kakally in reply to Nanpat

Hi Nanpat. Thank you

Will some kind person please tell us how to do a private message as I don’t know how to either 😱. Thank you

Kaarina profile image
KaarinaAdministrator

1. Click "chat" on the bottom menu.

2. Click the "New" button in the top right-hand corner of the page.

3. In the "Search people" box, type in the username of the member (or members) you want to message and select it from the drop-down menu. You can add up to 10 recipients for each message.

4. If you are sending a message to more than one member, choose a Group subject.

5. Type in your message!

Once it is ready, click the “Send” button.

On a computer click on the Chat icon at the top of the page (next to My hub) and follow instructions 2. onwards at the top of this posting.

Hope this helps.

You may also like...

Desperate to know what's causing RLS and Night Cramps

around with RLS as soon as I get horizontal. This is often followed by cramps in any/all my leg...

Iron Infusion in the U.S.

wise RLS colleagues!Has anyone had Medicare pay for an iron infusion for their RLS? I meet the RLS...

Going from no meds to pramipexole

just concerned about taking it given all the horror stories I’m reading about augmentation & am...

If You're Thinking of Switching Out Your DA for Lyrica...

swings? By day - no RLS, by night - RLS. What the heck is that all about? It's probably that...

Anyone here have obstructive sleep apnea too?

had jerking of his body, which I think was probably RLS. Poor Dad, I think lack of sleep...