If I can help one desperate fellow RL sufferer.....

[SurvivorD]

A while back I posted that I was going to stop my withdrawal of Pexola.......a family member who as I do suffered with chronic RL for close to twenty years changed the method of taking her medication and no RL. I decided to follow her method, as I, like so many of us was desperate!! 0.25mg three times a day. I was taking 1mg at night. From the first day my RL ceased. I watched TV without jumping up every 5 minutes (kept waiting for them to start) went to bed and although my sleep pattern is dreadful I never had the "crawlies". To fast forward.....I read the forum everyday and knew it was only a matter of time before the augmentation was going to kick in. I have cut down to 0.25mg at 2pm and 0.25mg at 8pm and just before bed take magnesium. All my other medications I take in the morning including my iron (I know it's advised to take at night). The withdrawal has been minimal compared to when I previously went off the Pexola and nearly went "mad"!! I am finding my RL only play up every so often around 3am and if I get up have a cuppa and go back to bed I can turn over and go back to sleep. Will cut down to only 0.25mg at night and eventually come off the Pexola completely.

I read everyday how each member of the forum reacts differently to medications and what method works for one doesn't for the other. If I can help just one person have the success I have had with this debilitating syndrome called "Restless legs" and can get off Pexola without the dreadful withdrawal it will make me very a happy chappy!!!

I am hoping by the time I have completed my withdrawal my iron levels will be up and I won't need any medication!!! Only time will tell.....oneday at a time!!! Was on Lyrica and had side affects I didn't like........ "fog" brain and felt sleepy for most of the day.

Again this forum is an absolute blessing........have learnt so much and find solace that I am not alone!!!

[Madlegs1]

Great. - will be very interesting to see how you get on.

You are a real trailblazer!

Keep us up to date on how the final bit of the journey goes!

Maybe you have unlocked a secret.

All the best.

[SurvivorD in reply to Madlegs1]

Thank you for you positive feedback!!

Wouldn't it be wonderful!!!

I am house-sitting my grandoggies. My daughter and her family are away for a week. When I get home I will take the next step and stop the 2pm dose. Will keep you posted on the journey.

Take care

[SurvivorD in reply to Madlegs1]

Just to keep you updated...........legs still behaving relatively well. Still have the odd little "crawlies" but nothing compared to what I had in the past and especially during my withdrawal from the 1mg of Pexola!!I follow Dr Mandell and he posted a video of "Legs Up the Wall". It was something I did and it definitely does help but don't wait until you climbing the wall, do it before going to bed. I have resumed doing this and don't know why I ever stopped! I have read some of the comments and a lot of RL sufferers have attested to the relief it gives them. I would suggest people with serious back problems should be cautious. I did read people with Glaucoma should not do this.

Let's say " every little bit helps"

Take care

[Jumpey]

Huge good luck.

[RLSLearner]

🤞

[SueJohnson]

That's great !