I also have my grandkids coming to visit in January who I haven't seen in 3 years. I should be excited for their arrival but instead I am panicking......they are staying for 10 days, I will be walking the halls, crying and moaning, can't go anywhere with them.......I think I might be better off out of the picture so Chris can enjoy the time with his grandkids. I hate my life, I hate that there are blockages to medication that could save me, my life is hell.
exit stage left: I also have my... - Restless Legs Syn...
exit stage left
Dear kathandkell in Tasmania, just saw your post, from the other side of the world (I live in The Netherlands). I - and most of us on thisforum - so understand your desperateness. Please don't give up. Is their anyone whom you could turn to for serious help? Apart from your husband, of course. Can anyone 'fight' for you? E.g. find out things, such as compassionate and open-minded doctors, Tasmanian patient support organisations, whatever else that may help you, and support your at doctors visits and the like?
I am sure your grandchildren also look forward to seeing their granny again, even if she is a bit grumpy due to her illness. Just explain. Even young childrens understand more than we think. And I am sure you will somehow find the energy to spend quality time with them. Please find a way and don't give up.
Sending you good vibes 💃
Hi KathandKell, I have sent a message to you via the chat... Hang in there, Don't give up!🤗
Can you get some benzos or opiods at a low dose that can get you through the day when the grandkids are awake?
They don't work,.
hi Kathandkell you are in Australia i know i cant help but i do understand...my doc said sorry not much more i can do for you only yesterday. how to carry on ????