safe Cholesterol reducing meds

[Jose651]

I need help pleasefellow RLS sufferers.

Posted a few days ago are there any members that are taking cholesterol reducing meds that do not aggravate their symptoms.

thank you in anticipation

[SueJohnson]

Nexlizet (Nustendi (UK) is a cholesterol lowering drug that is not a statin, but I don’t know if it exacerbates RLS symptoms. Ezetimibe (Zetia) - reduces cholesterol although It doesn't reduce cholesterol as fast as the statins, but according to Chris Columbus it didn't trigger his RLS although the FDA does show it increases RLS for some people and then there is Triglide which seems safe. You might want to discuss these with your doctor. A more difficult way to reduce cholesterol is to go vegan. My husband lowered his cholesterol from 221 to 131 this way.

I gave you these to you a couple days ago.

[Jose651 in reply to SueJohnson]

Sorry Sue, I’m finding that I’m confused ,

[SueJohnson in reply to Jose651]

What are you confused about?

[Jose651 in reply to SueJohnson]

Everything Sue since I had this stroke.

[SueJohnson in reply to Jose651]

Talk to your doctor. S/he should be able to explain everything. You can mention what was suggested here but s/he is the one to decide what is best for you.

[BarnGir1]

I take 20 mg. Zocor (Simvastatin) at bedtime every night. I have been taking this for about 10 years. I am currently having some problems with itching which can be a side effect of Zocor. I have one or two really bad nights a week as I am discontinuing Requip but at least 5 nights a week I am able to get 3-4 hours of sleep. I hope this info is helpful to you in some way.

[Jose651 in reply to BarnGir1]

Good to knowBarngirl1 thank you.

[SueJohnson in reply to Jose651]

Careful. Although barngirl1 is lucky to not have worse RLS on Zocur, it is a statin like atoritistatin and all statins make RLS worse for most.

[Jose651 in reply to SueJohnson]

I understand. Nusrendi sounds good although I’m nervous of trying anything . Is it a prescription med Sue? Thanks again

[SueJohnson in reply to Jose651]

Yes

[Nanpat in reply to SueJohnson]

Hi Sue, can you please name the medical journal or article that mentions this? I’d like to read up on it for my own consideration

Thanks

[SueJohnson in reply to Nanpat]

Are you asking about statins?

[Nanpat in reply to SueJohnson]

Yes thanks Sue

[SueJohnson in reply to Nanpat]

I don't have any articles specific to statins making RLS worse but there are articles showing it can cause leg pain, leg cramps and muscle weakness. Just google it. Also there are people on this forum that have said it bothered them.

[Grammieof4 in reply to SueJohnson]

I guess I’m lucky that my Rosuvastatin doesn’t make mine worse.

[Fingerandus in reply to SueJohnson]

hi Sue do you think just a tiny dose 5 mg of rosuvastatin could make RLs worse i take 1 a day.my results for blood tests for rheumatoid arthritis came back negative but doc rang me saying kidneys are not working as they should xx

[SueJohnson in reply to Fingerandus]

I glad for you about the rheumatoid arthritis but sorry about the kidneys not working as well for you. A couple of things you should know. If you take magnesium and have kidney problems it can cause excessive magnesium in your blood. Also "Morphine and codeine are not recommended, because the accumulation of their metabolites may cause neurotoxic symptoms. Oxycodone and hydromorphone can be safely used" from ncbi.nlm.nih.gov/pmc/articl... Discuss this with your doctor.

I have no idea if a tiny dose of rosuvastatin will make RLS worse as I don't know if it is dose dependent . And some people have no problems on statins although many do.

[Fingerandus in reply to SueJohnson]

thank you Sue so kind i am taking another blood test in two weeks i will have a discussion with doc then i dont take magnesium i did for a few days but couldnt carry on or with iron . i havent slept again tonite well its 4 09 am here in Western Australia all of me is restless and im so cold with it thankyou again xx

[rescuema]

You should suspect copper deficiency with uncontrollable cholesterol problems, especially with iron overdose/toxicity (lowers bioavailable iron recycling over time) that blocks copper along with other minerals. Look into supplementing whole food vitamin C (not ascorbic acid), bee pollen or other copper supplements along with cold pressed cod liver oil such as Rositas or NutraPro to increase ceruloplasmin level after checking the status through blood test. Restoring bioavailable copper should also help with RLS.

[Jose651 in reply to rescuema]

I take Magnisium resuem. I appreciate your reply. Thank you.

[rescuema in reply to Jose651]

Many people are adrenal exhausted with low supportive trace minerals so if you magnesium on top, it could tax your adrenals even further by depleting needed minerals such as potassium, salt, boron, etc. Support magnesium intake with trace mineral rich diet(meaning no empty calories), especially with enough natural salt and potassium rich foods.

[Jose651 in reply to rescuema]

Interesting, my sibling had Addison disease. My Potassium is good. . Hank you.

[rescuema in reply to Jose651]

Potassium level will mostly test in the normal range through blood serum test unless you are seriously deficient to keep you alive as your body desperately tries to maintain serum homeostasis. If you tested potassium sufficient through hair mineral analysis then you can say you are potassium sufficient.

[Jose651 in reply to rescuema]

Ohhh, didn’t know that .

[rescuema in reply to Jose651]

I just noticed you had a stroke so this is now even more pertinent. Checkout the below study.

“We found that the risk of stroke decreased with increasing dietary copper intake. Moreover, dietary copper intake was a significant protective factor for women, individuals <65 years old, individuals with hypertension, individuals who smoke, and diabetic stroke patients.”

ncbi.nlm.nih.gov/pmc/articl...

[rideaway in reply to rescuema]

Sound interesting, tell me more. I take magnesium and calcium every day as well as zinc with copper. So to much magnesium will deplete potasium and others?

[rescuema in reply to rideaway]

You should ideally separate your copper intake from zinc, since zinc can block copper absorption. Take copper separately in the AM along with good unfortified cod liver oil (mentioned above) to build ceruloplasmin enzyme activity - when I did this, my vision improved drastically despite having supplemented copper and zinc together for many years. Take zinc in the PM at around a ratio of 1:8 to copper generally. Magnesium is very important and most are deficient but must be supplemented carefully based on your mineral ratios, or you won't retain it while depleting other minerals. The issue of mineral balancing is a complex subject where one size doesn't fit all and you should ideally work with a naturopath. While a bit outdated on the issue of copper, this excellent book by Dr. Eck will help explain the concept if you want to learn more.

amazon.com/Energy-affects-e...

This anecdotal video should help explain some, although I don't recommend supplementing calcium supplements in general and you should attain it through food.

youtu.be/r7dHoUTai-4(Not working as expected?)

[rideaway]

Go on a keto diet and you can lower your cholesterol. It's bad enough we have to take drugs for RLS, no use taking them for things we can control with what we eat.

[Jose651 in reply to rideaway]

Very true rideaway. thank you.

[Eryl]

You might want to consider the benefits v side effects of reducing your cholesterol after watching this video and change your diet as the foods and lifestyle that raise bad cholesterol levels are the same ones that are the biggest driver of RLS. youtu.be/OzdJnjN06Ro(Not working as expected?)

[Eryl in reply to Eryl]

Also watch this video. youtu.be/C3rsNCFNAw8(Not working as expected?)

[Jose651 in reply to Eryl]

I would prefer to reduce by diet and will do that before trying any meds. Q10 is another option that I will look at seriously.

[Nanpat]

Yes I do, been on Lipitor 20 for many years and doesn’t affect mine at all.

[Bramble2000]

I started Atorvastatin a month ago and I’ve had no side effects at all.

[Jose651 in reply to Bramble2000]

That’s good to hear Bramble2000,

Thank you kindly

[Grammieof4]

I have been taking 20 mg of generic Crestor for many years without a problem.

[Jose651 in reply to Grammieof4]

Can you tell us a bit more about this Grammieof4 please

[Grammieof4]

not sure I understand what more you want me to tell you

I’ve been taking generic Crestor (rosuvastatin ) for many years.

[Jose651 in reply to Grammieof4]

So it’s a statin,ok, thank you

[suzsull48]

Hi, I’ve started taking Rosuvastatin and so far so good. I started on 5mg and a month ago increased it to 10mg. The only side effect I’ve noticed is weight gain

[Jose651 in reply to suzsull48]

Glad it’s working for you suzull48, thank you

[BarnGir1]

Thanks for starting this thread of conversation Jose651. The shared videos and other info has been enlightening. Good luck.

[Jose651 in reply to BarnGir1]

You are welcome BarnGir1,

Great informative replies as usual. I’ve another question to post about Blood Thinners that are safe for us ,whenever I absorb this info. Keep well

[Persevere99]

Hi

Vegan diet will reduce your total cholesterol for sure

As there is nil cholesterol in plant food, so the liver makes exactly what you need

Persevere - vegan for 32 years

[Jose651 in reply to Persevere99]

Heathy option Persevere99

Thank you

[san_ray70]

I take symvastatin, have done for years, I have not noticed it is any worse.

[Jose651 in reply to san_ray70]

Thank you for replying San_ray70. Long may it continue for you. I haven’t tried taking any more ofthem since my experience in the hospital. I will try taking in the morning.