Parkinson information : Just diagnosed... - Restless Legs Syn...

Restless Legs Syndrome

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Parkinson information

auldreekie18 profile image
6 Replies

Just diagnosed with Parkinson would like to know about recommended dosage and what times to take during daytime and do you take tablets during night to help restless legs ,any info would be great fully received from people who are dealing with this much appreciated .

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auldreekie18 profile image
auldreekie18
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6 Replies
LotteM profile image
LotteM

Hi auldreekie, I am sorry to hear this. Parkinsons Disease is a nasty one, as I learned and learn from a good friend who has been diagnosed 6 years ago. She doesn't have RLS though, although she sometime experiences rls-like symptoms.

This is the rls forum. I think you'd better also connect to t he PD forum on HU to get experiences. And I hope in the UK (likeThe Netherlands where I live) the is a very good support systems with PD specialist nurses in addition to the PD specialist neurologists. I hope the medicines for your PD will also help with the RLS. I know from my friend it takes a while to find effective doses and timing. And regularity is key, nit only regarding the timing of the meds but also food as it interferes with the medicines. I hope you will get fair control of your PD and that progress will be extremely slow.

auldreekie18 profile image
auldreekie18 in reply to LotteM

Thanks Lotte M will take your advice so much for enjoying old age .

SueJohnson profile image
SueJohnson

You never answered the question of whether you had a second opinion.

auldreekie18 profile image
auldreekie18 in reply to SueJohnson

No but it is PD my mother had it I see all the symptons she had .

martino profile image
martino

I have had severe RLS for quite some time and for the last five years I have used a medication, applied by a patch, which I understand is used in higher strength, for people with PD. The patch is used at the same time each day. I agree what LotteM has written and I hope you will find help.

auldreekie18 profile image
auldreekie18 in reply to martino

Thanks will battle on .

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