I have been trying to do the above. I was on 4 mg slow release Ropinerole. I have recently moved on to gabapentine and taking a total of 1500 mg in 300, then 600, then final 600.
Reducing the Ropinerole went fairly well at first but now trying to manage on 2 mg is horrendous.
My legs are jumping almost continually, day or night. I’m almost sorry I started this process.
it’s becoming unbearable.
You are probably trying to reduce too fast. The usual recommendation is to reduce by .25 every two weeks or so but you need to let your symptoms settle down before you make the next reduction and you may need to reduce by less or less frequently. Go back up a step to where you last reduced from and let it settle and then take it from there.
Yes - looking back at your previous post only 16 days ago you were on 3 mg. It should have taken you at least 8 weeks to get where you are today. SLOW DOWN.
Scottie-if I hadn't heard about Kratom powder on this site, I would have never made it. I had to use an opioid to get off the DA's and then kratom to help me from there. I am still using it.
I see you are in the UK. Someone said you can order it as tea in the UK.
I would order some asap-it will save you. Unless you can somehow get an opioid prescribed, this stuff is a lifesaver and works within minutes. The powder is fast acting and the capsules take longer. I have discovered taking both gets me longer rounds of sleep.
Hang in!
I’m in UK. I am under the impression that Kratom is not available here
Yes- just saw that and changed my answer. I saw a post where in the UK you can order it from a nearby country as tea. I encourage you to do it asap so you are not suffering like this!
It's illegal but you can buy online from kraatje.eu/contents/en-us/d...
They post to UK quickly and discreetly. It does help. Red vein borneo, half or 1 teaspoon usually helps.
I agree with others - slow down.
Most people find it horrendous and it's difficult to get off Ropinirole without the help of opioids.
Gabapentin won't help while you're still on Ropinirole so slow down, ask for opioids or use kratom or cannabis.
Scottie, I'm in the UK and have been in your shoes (as many of us have, with success). My GP prescribed gabapentin and also an opioid to help with the withdrawal symptoms. I was prescribed oxycodon (Targinact). Whilst it didn't stop the symptoms, it did help a bit. It's a horrible process getting off ropinirole, but it made a massive difference with my 24hr a day symptoms once I was off the stuff. Sue has given you some good advice. Go slowly. It'll be worth it in the end. Good luck!
Let your body tell you the time scale to come off.
Be kind to yourself.
Listen to the above advices.
Thanks everyone for the advice. I guess I’m just impatient. My neurologist refused me an opioid. I have ordered some kratom
I'm so glad you ordered it, as I hate to hear of your awful suffering. I have been there-we all have!
If you don't know, start with 1/2 to one teaspoon of powder in water or any drink. See what that does within 15 minutes or so, then add more. I wake up and take it throughout the night, though when I add the kratom capsules, it seems i can sleep longer, as they take longer to work.
Hang in-this should help you tremendously. Let me know!
15 minutes from ingestion to effect seems short - for me it’s about 25 to 30 minutes. But that’s not all that important really. What counts is that Kratom is a real lifesaver. it has saved mine as well, and countless others as well. Your GP will most likely advise you against it since it’s not a big pharma medication and hasn’t been tested formally. However, it has been used in southeast asia for centuries and there are no reliable reports of anyone dying from it. All reported deaths have been taking other, more dangerous drugs at the same time.
If you end up taking it longer than a few weeks, prepare for developing some tolerance after the first month or two. I had to go from about 1.5 g to about three after three or four months after beginning to take it. I only needed this one increase of dosage, I was able to take it for three years without increasing it again. I can’t say that about any other medication that I took for my Rls.
One last thing: if you take it without anything else, the effect of kratom wears off after 90 minutes to 2 hours. You can stretch that to four hours if you take it with grapefruit juice. Grapefruit slows down the metabolization of Kratom, enabling it to have a longer lasting effect.
Hi, Wonk042. Wow-that is such a great tip! My biggest struggle with it right now is trying to sleep through the night without having to take it so often. I thought the capsules were helping but this sounds much better.
Yes, the powder works on me so quickly. Dr. B says it is precisely because it IS powder and it gets into the system fast. He is not a fan.
Thank you for all of this added info!
Let me know how it works for you! I haven't used capsules because with 2x3,5g per day that would probably be a lot of capsules.
I'm in the same boat as you. I just managed to get off this horrible shit 2 nights ago. I too have probably decreased the dose too quickly, but I'm definitely not going back on it now. Even tho my RLS is the worst it's ever been. This is sooo horrible.
I'll try and order some kratom. Anything to get some sleep.
See my reply to Scottie, above. So glad you are ordering it! Hang in!! This will allow you to sleep! It's not perfect but, yes, anything to end the hell and get some rest.
Let me know, please! Then for round 2 of your fight, you can work on a long-term meds or supplements.
Congrats for getting off of it! Ugh-god, if we all had only known when we started those DA's....
i finally got off ropinirole completelyneurologist prescribed me 1- .25 pramipexole and 1 - 50 mg tramadol
i feel normal again. been taking for almost 8 weeks
I assume you augmented on ropinirole. You will soon also augment on pramipexole as it is also a dopamine agonist.
yes i know, but at least i feel good for now and i will attempt to get pramipexole after couple months. but what i have been reading it seems like no matter what meds you take you will still augmented on med taking to long
Only on dopamine agonists like ropinirole and pramipexole. The likelihood of augmenting on gabapentin is close to 1%.
Again thanks for all the replies. Excuse my naivety , but how do u take kratom powder?
Yes, the powder is what you want. It tastes pretty awful, but if you take it with grapefruit juice it’s not all that bad. You can mix it with some juice and let it sit for an hour {(it will take that long to mix because the powder doesn’t dissolve well in water) or you can use the so called toss and wash method. What that means is, that you put some Kratom powder in your mouth, then take a sip of beverage, mix it in your mouth intensely for five seconds and then swallow. You have to be really careful when you have the power in your mouth berore you drink though, because if you get anything into your airway it will make you cough for 20 minutes.
I have no idea why I see constantly huge amounts, way above 1g, of gabapentin mention. A normal dose I think is 2 capsules, which would be about 250mg from where I'm coming from. Anything above that causes huge hangover and acute counter reactions. I have no idea why someone would deliberately take that. It's also not known as a harmless drug anyway. A good amount of studies seems to be concerned with side-effects.
I guess it is because it works !!! According to the Mayo Clinic Updated Algorithm on RLS: "Most RLS patients require 1200 to 1800 mg of gabapentin daily." so 2 capsules is not a normal dose. Check it out at Https://mayoclinicproceedings.org/a... Yes for some people it can cause side effects that they can't tolerate but for many it doesn't. I take 1500 mg and it completely controls my symptoms.
Kratom arrived today (uk) about 11am. About 6pm legs started. I mixed a teaspoon (possibly too much) when grapefruit juice.
Within 30 mins lags settled and have been fine all right.
Great start
Tapering off Ropinerole and have questions…
Weaned off Pramipexole. Gabapentin?
How to come off Ropinerole
Coming off Ropinerol
Hell: Weaning off pramipexole 
