Why does alcohol trigger RL - Restless Legs Syn...

Restless Legs Syndrome

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Why does alcohol trigger RL

Lunatha profile image
32 Replies

Hallo, Ive googled this Q, but cannot find the answer.

I’ve been able to manage RL symptoms for many months now through diet - real foods, no processed carbs, sugar, wheat or grains. Occasionally I’ll have drink… some alcohol triggers RL, some doesn’t, I don’t understand why.

What I do know is that anything that is not natural to consume triggers RL - I handed back all the medications I was on, I’m drug free. This is a miracle for me, RL has blighted my whole life, I remember being as young as 6 or 7 having severe RL and being teased about it - it was just “growing pains”… I was eventually taken to see the G.P who prescribed “cough” medicine and indicated that It was all in my head.

Ultimately I’m curious to know more about what’s going on chemically in the body to trigger RL. This helps me to continue fine tuning my diet and lifestyle to manage this condition drug free, and I’ll do anything that helps to achieve this, if it means no alcohol ever again, so be it.

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Lunatha profile image
Lunatha
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32 Replies
Madlegs1 profile image
Madlegs1

I don't think there is any scientific answer to your question.Mainly because RLS is deemed not important enough to investigate.

All we can do is what happens on this site (and others) ,which is people science.

Keeping an intake diary is very helpful.

As to alcohol, it is probably sulphites/ sulphates?? That do the damage. Also maybe colourants?

Only by assiduous research can this be decided. 😉😝

Lunatha profile image
Lunatha in reply to Madlegs1

We are indeed the scientists on this disorder and thank goodness for us all being able to share our experiences and insights on here to help each other.

My diary is becoming very honed in, soy sauce is on the check list, I'm thinking fermentation, yeast, wheat/gluten.

SueJohnson profile image
SueJohnson

I've also heard by some that if they drink alcohol earlier in the day it doesn't bother their RLS.

Lunatha profile image
Lunatha in reply to SueJohnson

Ah!.. interesting to know. I don't drink in the day, so wouldn't be trying that one out.

Feduprls profile image
Feduprls in reply to SueJohnson

If i have an alcoholic drink before 3, my RLS isn't affected. But after that...forget it. So much worse!

SueJohnson profile image
SueJohnson in reply to Feduprls

Is your RLS under control?

Lunatha profile image
Lunatha in reply to SueJohnson

It seems it is. I'm still in disbelief though, all my life suffering and its practically gone. I do get some discomfort in the evening when resting, I do a forward bend, it seems to help release the nervous system, I feel relief when I do this - so whatever it does it's working. There is an odd night here and there that its triggered, the triggers are much easier to identify now I've made so many changes to my diet and also what I ingest in terms of pills and potions.. I take nothing but vit D and magnesium (and levothyroxine.) How are you managing - or not managing RL Sue?

SueJohnson profile image
SueJohnson in reply to Lunatha

That is great. So glad you responded to those, I take gabapentin and it completely controls my symptoms.

Lunatha profile image
Lunatha in reply to SueJohnson

That's great to hear too. RL is hell :-)

Joolsg profile image
Joolsg

Delighted you've found diet helps. Only certain types of alcohol triggers my RLS. White spirits are fine. Champagne and prosecco are the worst.

Birdland profile image
Birdland

My thought is that alcohol messes with dopamine. I know the brain is flooded with dopamine when you are feeling the effects, but then I think when the effect wears off you have a lull in dopamine. That’s my take on it.

Bluebboat profile image
Bluebboat

I think we are back to glutamate here. In addition to avoiding inflammatory foods it means no high glutamate foods such as slow cooked meats, soya sauce and sadly good red wine which is loaded with tannins.

Lunatha profile image
Lunatha in reply to Bluebboat

Food for thought ;-) especially after 20+ years of benzodiazepines to manage RL (nearly one year free of this drug) Gaba and glutamate are still readjusting so will be noting this...

Munroist profile image
Munroist

Alcohol doesn’t seem to have any predictable effect on my RLS. For me it’s mostly the amount or type of activity, either too little or too much.

Eryl profile image
Eryl

It's because alcohol causes inflammation. This inflammation is the cause of the classic beer belly but it also affects the whole body including the nerves. Inflamed nerves are hypersensitive and hence rls.

Lunatha profile image
Lunatha in reply to Eryl

Yes, that makes sense.. I am noting that anything that's not supposed to be in the body is a trigger, even a vitamin C tablet which has sweeteners in them causes RL.

Lunatha profile image
Lunatha

Its like a crazy puzzle isn't it... i'm ok with vodka, but not tequila. Either way I'm not bothered if I drink or not, its just good to know if I did want a drink that I can...

RLSdaily profile image
RLSdaily

I can have alcohol so long as it's clear.

Guitarpickin profile image
Guitarpickin

This is an interesting thread. Thanks for this question. I think I need to keep better notes on what happens when drinking certain types of alcohols. Some IPAs drive my legs crazy and definitely red wine (don’t drink white wine so can’t really speak on that). I don’t usually drink hard alcohol, but maybe I should switch from a beer or red wine to a vodka cocktail when out and see how it goes.

2bhere profile image
2bhere

Thank you for your share! Your experience with dietary changes and not needing drugs is mine! Occasionally I get triggered and I get up and take Pramipexole. I’ll pay more attention to time of day, what and quantity of alcohol to see if or find the correlation between alcohol and RLS. Each of our bodies is so unique. We are in this together!

Norika1 profile image
Norika1

I agree with some comments here. If I have a couple of glasses of wine I’m fine. But in the later afternoon/evening it certainly triggers my RLS badly. Especially if I over do it at a celebration I find meds don’t work if I have a little too much later in day. 😖 so no longer a party girl.

SueJohnson profile image
SueJohnson in reply to Norika1

Have you thought about coming of pramipexole? Up to 70% of people will suffer augmentation on it which believe me you don't want.

2bhere profile image
2bhere in reply to SueJohnson

Thank you for sharing about pramipexole!! I had no idea!!! Thank you! What is the safest prescription for an occasional flair of RLS? After eliminating sugar I prolly have a flair every 2 months or less.

SueJohnson profile image
SueJohnson in reply to 2bhere

Actually if you only have a flair every 2 months, pramipexole would be OK.

2bhere profile image
2bhere in reply to SueJohnson

Thank you!!! So grateful to have discovered this group.

Pte82 profile image
Pte82

Lunatha alcohol is an anti thiamine factor (others are in the stuttersence attachment below) meaning it depletes or destroys thiamine (vitamin B1) and also causes magnesium loss. Magnesium is needed to activate thiamine and vitamin D. Activated thiamine is needed to activate vitamin B6. In general the B vitamins work better together. Research thiamine, especially the fat soluble form benfotiamine, magnesium and vitamin D in addition to others found in the knowledge link below for not only RLS but other health issues you may have. The role thiamine plays in the brain, vagus nerve and gut are often overlooked. Sufferers of IBS may find relief with thiamine. In my wife's case of RLS, her cancer creates lactic acid which thiamine can clear from the muscles. I learned about benfotiamine's higher absorption levels in the blood and she used 300 mg twice a day with magnesium. The legs gradually calmed and I no longer get kicked. She only uses one benfotiamine a day now but uses a B complex with it. May not benefit everyone but glad it did for her. Always consult your health care professional before using any supplement.

stuttersense.blogspot.com/2...

knowledgeofhealth.com/answe...

daveasprey.com/restless-leg...

Lunatha profile image
Lunatha in reply to Pte82

Thank you for the links - sounds like your research has been hugely helpful to your wife... and also your sleep :-) I'll take a read later.

Zyxx profile image
Zyxx

Dopamine has something to do with it, which is why iron does, too (iron = needed for dopamine synthesis). But more recently there has been focus on glutamate. And then there are those who say RLS is caused by inflammation (which many researchers believe is also what’s behind depression.)So, a lot to choose from. I don’t know why alcohol causes RLS (I can’t drink or I pay for it in the night) - maybe it’s acute dopamine withdrawal, as alcohol does stimulate dopamine.

Lunatha profile image
Lunatha

Interesting link to glutamate. One thing to add to this conversation which I’ve not mentioned. I’ve been doing an intermittent fast 2 or 3 times a week 16/8 window. I’ve been following Jason Fung “the obesity code” and the “diabetes code” not because of weight issues but for metabolic health reasons (although I did need to loose a few pounds of belly fat which disappeared very fast) the fasting method apparently has huge benefits for reducing inflammation. I’m def linking the pieces of the puzzle.

Millersman profile image
Millersman

To me, it's not that alcohol triggers RLS, but that alcohol inhibits the medication and makes it less effective.

Nikon- profile image
Nikon-

hi I have found that the odd beer doesn’t trigger rls but spirits (of the alcohol type) do

Lunatha profile image
Lunatha

It seems like there are a lot of variations in our diet that can be a trigger for RL - its very interesting to be sharing this information and learning what helps. Shame that the professionals treating RL aren't recommending drug free options before dishing out all these neurotoxic, central nervous system suppressants.

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