American counterpart?: I am so grateful... - Restless Legs Syn...

Restless Legs Syndrome

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American counterpart?

Camry2020 profile image
8 Replies

I am so grateful to this community and have used you for years. I am American and wonder if there is am American site I might try also?Thanks so much for all the support you have provided.

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Camry2020 profile image
Camry2020
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8 Replies
Madlegs1 profile image
Madlegs1

No need to go anywhere else-- this is the best site in in the world for RLS.However, if you wish to seek second best ,then try

rlshelp.org. or

rls.org

Either of them are adequate for information relating to RLS.

(Don't believe everything you read on the internet)

😝😎

Camry2020 profile image
Camry2020 in reply to Madlegs1

Thank you. I'm not leaving or going anywhere!

Joolsg profile image
Joolsg

Yes. The RLS foundation has a help forum but it's not as easy to use as this one. Members of rls.org receive quarterly magazines and access to webinars by the top RLS experts. The $35 annual membership funds research so well worth joining.Many of the UK members are also members of the US Foundation as they're at least 10 years ahead of Europe and the UK.

rls.org is a good forum and it's interesting to get a slightly different perspective. I agree with Joolsg that it is well worth the annual fee to join the US foundation for access to the magazine alone as well as access to their very useful website. But also they do sterling work in supporting sufferers, compiling databases of rls 'centres of excellence' and recommended consultants, promoting awareness and good treatment of the condition. They are an exemplary organisation.

Pagan707 profile image
Pagan707

Don’t be greedy! Lol 90% of what us Brits look up takes us to American sites, let us have this one!😂😂😂 Don’t get me wrong the information in the U.S. sites is great but I often read up on things to find it’s available in U.S. but not in England. I guess it works both ways!

Parminter profile image
Parminter

I agree with the others. Join the RLS Foundation in America. It has a list of local support groups amongst many other things. It also has its own forum, which is very informative and active.The Southern California RLS support group, at rlshelp.org, has a vast number of patients letters about their issues, which are answered y Doctor Mark Buchfuhrer, who wrote the textbook.

Join them all.

SueJohnson profile image
SueJohnson

I agree with all the above and am a member of the RLS Foundation. However their forum is not very active. I find this site to be the best.

kharris121 profile image
kharris121

You might want to check out restlesslegssyndrome.sleep-... . The site has articles written by people living with RLS. No support groups but there is a community hub (restlesslegssyndrome.sleep-....

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