I have been slowly weaning myself off Ropinirole over the last few months since starting Targinact , but even following the guidelines overnight is particularly challenging. Sleep is difficult & it feels like I am on a ship & all I can feel is the vibration of the engine running. I was on 2 Mg a day now down to 1.25 Mg.
I am persevering & wondering how long it takes for the reaction to subside.
I am on 2 mg and the legs are ‘still’ at the moment but I am gaining weight and when I remove the patch there is irritation where it was ‘stuck’. I always place the new one in a different place to the position of the previous one.
I still concerned as time goes by that I will experience augmentation as I did with the ropinerole ( which was evil!)
I have suffered with insomnia for thirty plus years and I’m afraid sleeping tablets dependency is another problem!
I’m not sure that was helpful but RLS is ghastly and I agree with that suggestion that it should be referred to as Ekborn disease as the name restless legs doesn’t have a serious ring to it! .
I misread the question so put it down to lack of sleep. I am wearing Rotigotine patches to which I was referring. This was following a gradual withdrawal from ropinerole as tar Gina the alone were ineffectual. Apologies for the confusion I may have caused.
It took me a long hard year to reduce from 3.5mg to zero. The last set of reductions can the hardest. However the way to do it is in small steps over a period of time. Give at least 2 weeks between each reduction, longer if necessary. The difficult bit is just after a reduction, but you will get there! You're not alone in this.
Thanks - it's a long slog that.
Yes but it was worth it to get rid of the augmentation. I eventually went on to a cycle of low dosage Pramipexole/Ropinirole. When my body started jerking again then I'd swap over to the other DA. However in the end I started on Temgesic and that worked wonderfully (at least for 3 months).
How long were you on ropinerole.
Probably about 10 years
I’ll be praying for you.
I have been coming off Ropinirole for the last 4 months & have reached the point where I have reduced from 2 MG per day to 0.125 Mcg a day at night. I normally wake after 30 mins asleep to severe RLS activity (jerks, fidgeting etc) then after rolling around for 2 hrs it goes off & I sleep again. I am told the last step is the worst where I drop this 0.125 Mcg to zero.
How long have you been on ropinirole
10 years
Well it was the first night with NO Ropinirole after weaning for months - what a terible night. I felt like I was having minor convulsions all night until about 4 AM when I finally slept for an hour. Let's see what today & tonight brings.
Well done joe for persevering. I hope the convulsions and other symptoms diminish soon. 👏🏻
Do you take anything to replace the ropinirole?
Yes I have replaced it with Targinact twice a day.
That should cover your symptoms when the increased intensity due to stopping the ropinirole eases. It did in my case. Although I had to increase from 5mg to 10mg in the evening dose. I hope the Targinact works well for you and without or very few side effects.
Coming off pramipexole 
coming off targinact 
My journey and coming off ropinirole.
coming off Pramipexole 
Now off Ropinirole 
