GOVERNMENT PETITION: Is anyone aware of... - Restless Legs Syn...

Restless Legs Syndrome

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GOVERNMENT PETITION

Joolsg profile image
Joolsg

Is anyone aware of this petition? I'm currently working on a campaign to ensure RLS is taught at Medical Schools in the UK and have received replies from the ABN and several Medical Schools, and the MS Society have been giving me very helpful assistance.

Clearly someone else has had the same idea and it would be great if we could work together. If anyone knows the lead petitioner, Paul Maloney, please send me a message. He states that he's 32 and on 4 different pain meds. I'm sure he would have listed it on this site if he were a member so perhaps he's active on Facebook or another forum.

In the meantime, perhaps we should sign the petition. My MP has just sent it to me when I asked for further information on lobbying about RLS.

petition.parliament.uk/peti...

38 Replies

Signed ✅

Signed. 👍

Signed and shared

Signed but can’t reach my email till tomorrow to confirm 😊

Done!

Signed and shared.

Include PLMD and I'm with you!

Joolsg profile image
Joolsg in reply to dickJones

Any teaching of RLS would have to include PLMD. I just wish I knew Paul Maloney so we could join up - the more the merrier.

Elisse2 profile image
Elisse2 in reply to Joolsg

Hi Jools have shared to a couple of FB group, we need al awful lot of people to sign hope we reach the target. Not been on here for a while, i a m not very well. But saw this when i was awake in the night. :)

Joolsg profile image
Joolsg in reply to Elisse2

Thanks Elissse. I think the lead petitioner needs more social media awareness/ contacts if he wants people to know about it.Sorry to hear you've not been well. I really hope things get better for you soon. Take care, Jools

Elisse2 profile image
Elisse2 in reply to Joolsg

i have found him on a fb group he posted last year if he did a petition who would support it. i can message him anything you want me to say to him. ?

Thanks for what you’re doing Jools and thank you for the link to the petition which I have just signed.Better info via teaching is going to be useful but even when drs know all their armoury is limited & problems frequently occur.

I can’t wait for further research & improved understanding & treatment and I just hope it happens in my lifetime!

Signed

Signed!

Signed 🤞

Signed 🥰

Signed and shared

Signed

Thanks for making me aware of petition. I've signed and sent it round my friends and family who are only too aware of rls and its effects!

Signed. Will contact my MP. Thank you so much for what you are doing to raise awareness. I couldn’t see any obvious way to contact Paul Maloney from the petition. However it seems like he must be in communication with doctors at least to have medication and maybe has access to a different support group so could be useful to find him. I’ve also just found a restless legs Facebook group while searching so I’ll see if I can join.

Signed and spreading the word!

Done.x And thank you so much for what you are doing.x

I opened to sign, however, one has to be a British or UK citizen. I am not. Prayers that it gains the number of signatures needed.

Great done Thanks😀

Done 🤞

Signed.

Done

I went to sign and couldn't because I am USA. I was bummed. They need 10,000 to even get started. Open it up to everyone and you will have your 100,000 needed for Congress.

Joolsg profile image
Joolsg in reply to 1Ginge1

The problem is that this petition was started in November by someone who isn't a member of RLS UK. I agree that it will be very difficult to raise the necessary 100k signatures without a big publicity campaign. I understand why it's limited to UK but maybe it will raise the profile a little.

Signed and shared and already have more people sign up from the link. Thanks so much for bringing this to our attention as I would never had known.

Hi Jools! Thanks for passing this on. I have signed! X

Signed

Done! 😉

Signed

signed

Signed.

Signed and shared

Signed

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