Full body RSL or is this anxiety?

[Sandee007]

I need some help...

Have been on this forum a few times and I still am not sure what is wrong with me after 3 years...

After many visits with ALL SORTS of doctors, neuro told me I have RLS and anxiety...

But another (orto) told me problems are from stenosis and splayfeet...and my

leg is a bit shorter then the other one...

At this moment, I don't know what to believe or do anymore, so please if you can help me with advice it would make me very happy...

My symptoms are:

Extreme restless feelings,can't sit still and have to stretch a lot.

Cramping of the calves and foot.

Numbness feet and can not feel my toes. ( I hit the ground already twice this year)

Balance is off...wobbly legs and the ground feels like cotton wool or something like that.

Back and shoulder pain and my biggest problem: stiffness...I feel like a robot in the morning and after walking a lot it gets better.

Standing for a long time or sitting is very difficult!

When I sit or go to sleep I have internal vibrations-soda pop-in the whole body!

Thanks for any advice or info...

Sandy

[MumofSam]

Hi Sandy

I had surgery for spinal stenosis a few years ago. Some of the symptoms you describe certainly sound related to that, ie sciatica, namely the numbness in your feet and pain, difficulty standing for long periods etc.

What meds are you on? I was prescribed Tramadol and Pregabalin, which have both made my RLS a million times worse than it was before, even though I stopped taking them over 8 months ago. Didn’t get symptoms while I was taking them, but symptoms went through the roof if I stopped.

Cramping is a separate issue, not RLS. It sounds as though you’ve got a lot going on at the moment, and for me stress can definitely make RLS worse.

Anyway, as I said, some of what you’re experiencing could be being triggered by medication. Are you down to have an operation for the stenosis?

[Sandee007 in reply to MumofSam]

At the moment I only take Codeine and paracetamol...

Omega3 fishoil-Calcium-Magnesium.

Thanks for your advice.

No operation because I don't want to do that...

[Hidden]

Hi Sandee, not heard from you for a while. Sorry you seem to be making no progress.

I genuinely would like to help you, but it doesn't seem possible because I suspect you're not being honest and I'm not sure if the symptoms you describe are real.

This is just an observation, not a criticism. My view is that if you were to offer some realistic facts about yourself, people might be more able to help you meet your needs, whatever they are.

I would like to help.you and you do have my sympathy, not because of your symptoms but because of your need..

[RLSgirl]

I’m just going to through this out here. I’ve had a lot of musculoskeletal issues. some of which you are describing with a shorter leg throwing off my gate and posture and my body compensating for years as my health slowly deteriating. Neck back pain. Knee pain…..

Anyway, about a year ago I started seeing a body worker that is trained in a technique called “anatomy trains” (similar to rolphing) it has changed my life and brought back a measure of functioning and health I haven’t had in a while by fixing my posture and movement and getting rid of muscular and fascial restrictions.

I recently came across this video which I think was a great visual demonstration of what myofascial body work is. Take a look if you are interested.

youtube.com/watch?v=v54l3wD...(Not working as expected?)

[Sandee007]

I am going to watch the video now and will comment later...

Thanks for the info and time.

I am really grateful that there are honest and good people here...

My biggest problem is just that I went to several doctors and they mostly had ALL a different opinion about what is wrong with me.

My neuro told me RLS and anxiety...my orto-doctor (feet) told me I had soda-pop legs/ shoulder and backpain because of a shorter leg and splayfeet and some stenosis...

The housedoctor thinks it is artritis, so...

Who is telling the truth???

All of this STARTED after EVLT-operation that I had 3-4 years ago. EVLT is removing lasering bad veins in my leg...