Out of Desperation : Currently, I’m... - Restless Legs Syn...

Restless Legs Syndrome

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Out of Desperation

Nlthomp profile image
6 Replies

Currently, I’m reducing Ropinirole to 2mg and introducing Gabapentin. Just a thought to mention.... when I get completely desperate at 4am, I put an ice pack on the affected leg/arm and within 15-minutes it usually curtails my RLS, so I can sleep.

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Nlthomp
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6 Replies

I'm glad that something works for you. Hopefully when the gabapentin starts to work fully and you've withdrawn from the ropinirole you won't be awake at 4 am.

It does take a few weeks for gabapentin to fully work and you may need to be taking at least 900mg.

I switched from a dopamine agonist to gabapentin, it's working really well for me.

Nlthomp profile image
Nlthomp in reply to

Thanks for the response, Manerva. Do ice packs work for other RLS sufferers?

in reply to Nlthomp

Never tried it myself, I believe people try all sorts of things that either alter circulation or act as a "counterirritant". Ice, I guess does both.

If it works for you, then it works.

Jimbo77 profile image
Jimbo77 in reply to Nlthomp

I’m going to give the ice packs a try. Thanks for the heads up!

Nlthomp profile image
Nlthomp in reply to Jimbo77

Hi Jimbo, I use the wrap-a-round type that are about 24”w x 12”h. I wrap them around my leg snuggly and find that I’ll wake up to go to the bathroom and I’ve fallen asleep with it on. I bought it on Amazon.

Polar Ice Large Knee Wrap Cold Therapy Wearable Ice Pack Adjustable Hook and Loop ... amazon.com/dp/B001G0N70S/re...

Best of luck to you!

Jimbo77 profile image
Jimbo77 in reply to Nlthomp

Thanks very much! I’ll definitely give it a shot. Best of luck to you as well!

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