New arrival - just to say 'Hi'

[Awkward_fellow]

Long time RLS sufferer but currently helped by Pramipexole. Thought I would join in here to see how others cope.

[Madlegs1]

This is a wonderful site ,peopled by the most incredible lot of human beans ever encounterable.

While you're here, just a heads up on the ould Prami. Keep to the lowest dose that give 80% relief. When it stops working ( it differs for everyone) do not be tempted to increase the dose, even if advised by your Dr.

Check out "augmentation" sometime.

No hurry, no worry.😊

[Awkward_fellow in reply to Madlegs1]

Thanks! Been on it some years and still on the lowest dose. Seems to be working 90% of the time for me. Just once in a while I need a second pill which I cut in half so I take only the half of a full pill. But that's rare, usually when I'm tired.

No meds and it is absolute torture.

[Hidden in reply to Awkward_fellow]

Great to hear that Pramipexole is working for you, it does work when it does work. I took it for years but. because of bad advice and ignorance the maximum dose.

I had to stop it because of augmentation and rebound.

[Awkward_fellow in reply to Hidden]

I heard about the augmentation (NOT from my GP!) and so I have been as conservative as possible. Keep my fingers crossed I can continue for a few more years yet. By then who knows, better treatments might be around?

Sorry to hear it did not work out for you.

[Joolsg]

Welcome- you’ll learn more from the good people on here than from any GP. Madlegs has given you excellent advice.

Most of us started off on either Mirapex (pramipexole) or Ropinirole (requip) and had blissful RLS free years. Most of us also joined this site when our RLS became unbearable because of Augmentation.

You should have some great years on Mirapex and you are aware of the high risk of Augmentation. Forewarned is forearmed.