RLS Exacerbated by Neuroma

[wcp2008]

Thanks to Joolsg and her responses and recommendation to get the book Clinical Management of Restless Legs Syndrome, I am learning more about my RLS and augmentation. The book is very informative...found it at Amazon.com (by Dr's Lee, Buchfuhrer, Allen and Hening). In my internet searches, I found the article (link below) regarding the link between neuroma and RLS. I have 2 neuromas on my right foot and have suspected for awhile that they may be making the RLS symptoms worse on that side. Then...VOILA...I find this article! I will be seeing my doctor soon on this and will report my results.

On another note, I had thought that Truvia might also be an RLS issue. (Of course, I am trying to stave off the inevitable augmentation issue surrounding Ropinirole as being a culprit). I had noticed that drinking decaf tea in the evening (sweetened with Truvia) seemed to make my RLS worse. I actually stopped drinking tea in the evening altogether, but have also cut my Truvia intake in half. I have had no episodes after going to bed since making the changes.

I do, however, fight with the RLS between 3 and 7pm and spend my time standing in the kitchen or sitting on a hard chair at the counter, as a comfy chair or couch only makes it worse. This I will attribute to the neuroma, until I find out otherwise. Those of you who are wiser are probably right, in that I am augmenting on my Ropinirole. That, is for another, later Dr's visit. At least, I am getting some sleep at night...for now.

The link I promised above, on neuroma is as follows:

ncbi.nlm.nih.gov/pmc/articl...

[Hidden]

Good information, thank you.

[Joolsg]

I’m delighted you found the book so helpful. I take it with me wherever I visit the doctor or neurologist and refer to it constantly.

Triggers definitely make RLS worse.

You will know intuitively if you are suffering Augmentation- and early afternoon symptoms are an indication.

Good luck in finding the right way forward.

[troopdad]

Hey their Troopdad here no Doctor just old man with RLS.My GP told me to take 8 per day for relief. I did..My Neurologist went tru the roof,cut back now. I exited Ropinrole that night with know problems..No after trying `=3 per dose I am back at one at 3PM.Helps beat the night time RLS so far so good..I cannot tell when I take them or not gradual builds up..Old advice take it/forget it/sleep on it..

Grace Troopdad