Back again

[beady3]

Nice to be back after being away for awhile , looking back I am no better off with any medication still the same up half the night walking about Just coming off the patch itall seems to work for a short while then back to square one Got an app with neurologist July that will be the fourth poor doc doesn’t know what to give me , nor does the neurologist so why am I going it’s to keep the doc happy I think.

[Hidden]

Hi beady! Nice to have you back! I don’t know if you remember me, but my former username was jess3648.

I’m sorry you’re still having a hard time. I hope the neurologist in July can help you! It sounds like you’re not holding out much hope, so I’ll do it for you!

[beady3 in reply to Hidden]

Hello yes I do remember you , are you having any luck

[Hidden in reply to beady3]

Yes, thanks!

[Brica]

Beady, Not all Neurologists know how to treat RLS. The RLS website can give names of Doctors who are familiar with this condition. That is how I found a Neurologist who has helped me a great deal. Brica

[Hidden in reply to Brica]

Beady is in the UK, so the RLS website wont be helpful for her.

[Hidden]

rlshelp.org

or

rls.org

or

rls-uk.org

[Hidden]

Hi Beady sorry you are still having a rough time. Once off the patch i would stay away from all the dopamine meds, if i am correct you have augmented on them before. ? I hope you find a med which helps you.

[smilingjane]

Hi beady so sorry to hear of all of this.

I have/had suffered for around 30 years and eventually after seeing my GP on the same day as presenting at A&E I was prescribed Longtec.

I had researched on the RLS Foundation W.site the night before presenting at A&E and saw that Longtec can be an option for people that have tried everything else out there. Which I had. Before starting on Longtec i was suffering from Augmentation from other drugs. The RL had spread around my body to arms so was in a hopeless state.

I have faced resistance from other GPs around Longtec, however I do have it on repeat now. It has changed my life. I can now sleep at night.

If Your GP is resistant tell him/her to research on the RLF website and elswhere re Longtec.

Nobody should have to suffer like this unnecessarily.

Let me know how you go and take care

Jane x