Hi. I have been taking ropinirole for some time now and started increasing the drug Now on 2.5mgs daily and finding the need to increase again. It's like zombie land. Waist up knacered. Legs want to carry on dancing.
Ropinirole : Hi. I have been taking... - Restless Legs Syn...
Hi, I live in the uk and not sure if GPs in other countries have dihydrocodeine I have suffered with RLS for 40 years in the last 10 years I have had RLS everywhere! I was given dihydrocodeine by chance from my mother in law as on visiting I explained how this RLS which may I add I hadn’t had the diagnosis from a GP telling me what I was suffering from as I just suffered complained to them for years as an 11 year old they said it was growing pains!! Anyway by chance took 2 within an hour it was gone! Completely gone! I’ve been taking them from there on prescription and by taking just 2 3 times a day you can live and sleep completely RLS free! Yes FREE if I miss some as in the day as I’m moving I don’t get it only if I stay still longer than 10 mins once I’ve taken the 1 tabs I can suffer for an hour while they get in my system but once they have I feel nothing I have a normal life so much so best thing is I can go to bed and sleep all night. Sometimes as long as I’m busy until bed I can actually use just 2 for bed! I’ve never had to exceed the dose either, it’s like a magic cure, for so little amount of tablets I just wondered if anyone could try them to find complete relief.
Hi I can promise you I haven’t had one bad side effects after 20 years of taking them, as long as i take 2 3 times a day I don’t even get a twitch, but if I miss 2 through the day because I’ve been busy after 10 mins of being still I get attacked by RLS in the arms, back all of the spine my lags are off then I suffer for an hour whilst waiting for the effect to kick in,
Thing is I find that it isn’t the codeine, I’ve tried codeine and cocodeine they don’t touch my RLS! I would love to break down the ingredients of the tabs and try them one by one, on saying that as I get total relief from them it’s very possible others don’t I only hope that if it can help even one person live again I would make my day, I just hoped letting others know it maybe a chance any chance of being free from this unbelievable tourcher I’m happy.
I am the same..only on small dose .5mg 1 or 2 daily but finding I need to take more.. worst time for me is about 3 pm.. my arms start first then my legs.. I also get pain too.. I have tendonitis in both legs so am on tabs for pain..sometimes I actually feel like taking a fork or something to my legs to try and stop the pain and twitching
Is the pain due to tendonitis rather than RLS? I have had tendonitis and it is painful. Are you on medication for the tendonitis? If not, then perhaps you should be. Or have some other therapy.
It is possible, I guess that the tendonitis is triggering the RLS, but not certainly. If you're getting RLS symptoms at 3pm, mid afternoon then you're possibly suffering from augmentation.
It is a problem when you have 2 (or more) conditions that have some common symptoms, it's difficult to separate them.
Yes I was on Ropinirole for several years, gradually taking more as prescribed by GPs and Consultants. I ended up taking 4mg a day as well as 200mg Tramadol and getting symptoms most of the day. I couldn’t enjoy afternoons, evenings or nights - legs jumping all the time. The lovely people on this website told me this was obvious augmentation, however much I increased the Ropinirole the symptoms would worsen. I had to come off it, which I have now done. This had to be very gradually, with the help of the Tramadol, and this website, but it was hard.
I now take Pregabalin, which my GP was quite happy to prescribe. I have had to tritrate this up to 250mg at night but will not go higher. The most given for rls is 300mg. I still take 150mg Tramadol also.
I can only tell you my experience, but the advice given on this site is invaluable, as they have all been there.
Good luck with whatever you decide and for the future x