Poppy 7

[Verbri7]

I have just had worse four days of r l s I have never been tested for r l s. But had it for years but doctors put me on roprinorole But I am wounding if I need iron tab s an it gets worse when my monthly should start. Now it's been coming in my arms my doctors don't seem that bothered. I get to the stage where I could take any thing so need Help xxx

[Frankieanddaisy123]

Have you had any blood test done to see if you are lacking in iron? I take pramepexole they are great for me 3 hours before bedtime.I also get it in my arms when it’s at it’s worse .

[Madlegs1]

How long have you been taking the Ropinerol? What dose are you on. Have you had to increase the dose, because it wasn't working?

If you think it's an iron issue, you need to get a serum ferritin blood test. The result should be at least 100. If below, then supplement with Gentle Iron and vit c, in consultation with your doctor.

Good luck.

[Joolsg]

One word- Augmentation. Look on main page of RLS UK website- there’s a video explaining what Augmentation is.

Ropinirole and pramipexole are the usual suspects. Dose stops working, dose increases, RLS gets more intense and starts earlier and moves to arms and other body parts. Ropinirole is then just ‘pouring fuel on the fire’ or ‘feeding the beast ‘ according to RLS experts.

Only solution is to slowly reduce with the help of strong painkillers like tramadol and then switch to other meds like alpha2delta ligands ( pregabalin or Gabapentin) or opioids ( tramadol, OxyContin, Morphine sulphate).

Pippins has just posted about pinning a post to the site about Augmentation because we get at least 2/3 people a day asking for help and it’s usually because they have been on dopamine agonists like Ropinirole for years and their RLS is becoming unbearable because of Augmentation.