Day 6 of Mirapex withdrawal - Restless Legs Syn...

Restless Legs Syndrome

21,294 members14,928 posts

Day 6 of Mirapex withdrawal

Zbirth1 profile image
3 Replies

I’M A SURVIVOR. (❄️ long snowy night rambling ❄️)

I had 2 heart attacks back when they didn’t understand how to treat women for optimal survival. I lived through a life threatening bone infection where the only option was a scary last ditch antibiotic which also could kill me. Thankfully it only cost me my toes. This same year was a diagnosis of breast cancer. Once again I am thankful to be one of the luckier ones. I had a couple years using a wheelchair & a couple more on bed/recliner rest. Eleven months ago septic shock resulted in me coding & having my brain scrambled. The symptoms are just now starting to reverse & I feel better than I have felt in 15 years. Leading up to this way too lengthy post but I have to voice my frustrations as I once again face uncharted waters that really truly suck. Just when I feel like myself I’m afraid I’m gonna leave again

😏😳😬😥😰😱🥺

This is Day 2 of a 30 day withdrawal from Mirapex.

I’ve been on this evil prescription med for more than 15 years for increasingly severe Restless Legs Syndrome.

No-one ever shared the dangers & complications increasingly implicated with this Drug.

😏😤

As a nurse you learn to balance your facts & info but I have yet to read even a small positive for the next 28 days. My Dr described it as a living hell similar to heroin withdrawal. IF you are lucky you may get 1-2 fractured hours of sleep TOTAL in the next 7 days. Weeks 2&3 no more than 1-2 hours of fractured sleep a night then week 4 is the worst. The agony already caused by symptoms are even more intensely exasperated to where you can’t sit or sleep. People report riding an exercise bike or repeatedly climbing stairs for days. Severe depression, psychosis & suicidal tendencies are not uncommon during the withdrawal. 2 years later many people are still battling with these . I think this will be my biggest challenge yet 😳🥺😩😖😱😰 BUT... I AM a SURVIVOR. ALBEIT A SCARED ONE.

Day 6 & so far not much worse than the usual nightly agony. I’m so relieved but tonight could be the game changer as I drop another pill. I think I may have hit on a major treatment plan but sadly not everyone has access to medical pot. 😥. I told my Dr I would go through this IF he would prescribe Oxycodone. I believe this is a biggie for symptom relief. I also made up “knock out” capsules from the most powerful sleep THC/CBD oil I could buy. I may just stay on these forever. I average 0-5 hrs of fractured sleep, never more but the past 2 days I’ve slept 7&10 hours!!!!!!!!😮😮😮😮😲. I NEVER do this. Only woke a couple of times. Hey. If I can sleep through withdrawal I will be a VERY happy woman❣️ I can tell the dragon is starting to stir. My arms are kinda nasty right now. Time for an Oxy. Think I will put my knee braces on cause it’s not uncommon for me to strain my meniscus. I tore it once & don’t want that to happen again. Here’s hoping you all can get at least some peaceful slumbers tonight. 🥺🥺🥺🥺😴😴😴😴😴😴

Written by
Zbirth1 profile image
Zbirth1
To view profiles and participate in discussions please or .
Read more about...
3 Replies
Zbirth1 profile image
Zbirth1

Oops. An FYI. My sleep Dr is nationally respected & used to be on the board of The RLS Institute. He refers to my RLS as the worst he has ever & wrote a paper about it 😏

Wow Zbirth1 you really have been through the mill. I guessed you must have a good RLS doctor reading through your posts as he warned you what to expect coming off mirapexin. You have done exceptionally well to get this far - well done. I hope things continue to be manageable. Most people find their symptoms improve appreciably once they finish the mirapexin. Fingers crossed that this will happen for you.

Joolsg profile image
Joolsg

Well done for getting through all that and now withdrawal. Your doctor sounds very knowledgeable.

I only got through withdrawal with the help of tramadol and cannabis. The constant leg jerks ( every 10 seconds) all through the night are hellish.

Stick with it and you’ll be so much better without dopamine agonists. They were such a miracle when we all started them and then turned into a nightmare.

I wish you strength to get through this. Sending positive thoughts your way.

Get your serum ferritin up above 100 and take magnesium citrate- they’ll really help for once off dopamine agonists.

You may also like...

Mirapex pramipexole withdrawal taper

This is the 12th day after my second reduction in Mirapex. My first production was from 0.5 mg to...

Withdraw from MIRAPEX to Cannabis

severe RLS and I have been on Mirapex for about 20 years, I need to get off of it as it has caused...

Mirapex withdrawal complete... now what?

patch all day yesterday. I even sat on a very soft sofa holding my new granddaughter for 2 hours...

Mirapex pramipexole withdrawal symptom question

pramipexole withdrawal symptoms ever reinstated to their last dose in order to get rid of the...

Does anyone know anything about Mirapex withdrawal?

tapering from Mirapex/pramipexole. I only had a few bad days after my first cut. I started at 0.5...