I hope that this site is still current. Hello!! I just found this site and I am SOOOO glad!!! I have had RLS since I was very young, 5 or 6 years old. I am now 48. In the last few years I have been having this weird issue that I have not been able to verify until I found this site.
I, too, have the pee issue and RLS getting worse. I thought I was crazy. And when I tried to explain it to new doctor (I recently moved to another state), she just looked at me like I was making this crap up.
I am so glad to see that the pee/RLS issue I have is REAL AND ACTUALLY EXISTS. The pee issue has just recently started in the past few years. I thought at first it was UTIs or bladder infections, but I had NO OTHER SYMPTOMS. No constant rush to the bathroom to pee and then nothing, no burning--nothing. That kind of weirded me out.
But this got worse and made sleeping and relaxing almost impossible. I, too, get up several times a night, feeling "FULL" but then nothing, a trickle. This "full" feeling definitely worsens my RLS, when I go my RLS subsides a tiny bit. I am on ropinerol (spelling?) and it helps a bit, but the whole pee/bladder thing really kicks my RLS into high gear. I have to get up 4 or more times a night to relieve the feeling, but then its the same thing over and over: just a trickle.
Sadly even during the day my RLS and this pee issue affects my daytime routine; this has gotten worse as well over the last few years, my daytime routine being slammed by this condition.
If anyone has any suggestions for people like us in regards to other sites or resources I would love to hear about them, and from you. Thanks!
Hi and welcome,
What you describe is on a whole other level from the link I found between rls and full bladder. For me it is merely that if I empty my bladder it sometimes eases my rls. I don’t have that ‘full’ feeling when actually there is only a tiny trickle.
I’m not sure what to say about it but more generally two things spring to mind. First, have you had your serum ferritin checked as raising iron levels to over 100 is now a first line treatment amongst expwerts in rls. Secondly, ropinerole can eventually start to make rls symptoms much worse - especially if you start to increase the dose - and you find you need more and more to control the rls. It could be that ropinerole is contributing to this sensation of rls being connected to needing to pee.