I hope that this site is still current. Hello!! I just found this site and I am SOOOO glad!!! I have had RLS since I was very young, 5 or 6 years old. I am now 48. In the last few years I have been having this weird issue that I have not been able to verify until I found this site.
I, too, have the pee issue and RLS getting worse. I thought I was crazy. And when I tried to explain it to new doctor (I recently moved to another state), she just looked at me like I was making this crap up.
I am so glad to see that the pee/RLS issue I have is REAL AND ACTUALLY EXISTS. The pee issue has just recently started in the past few years. I thought at first it was UTIs or bladder infections, but I had NO OTHER SYMPTOMS. No constant rush to the bathroom to pee and then nothing, no burning--nothing. That kind of weirded me out.
But this got worse and made sleeping and relaxing almost impossible. I, too, get up several times a night, feeling "FULL" but then nothing, a trickle. This "full" feeling definitely worsens my RLS, when I go my RLS subsides a tiny bit. I am on ropinerol (spelling?) and it helps a bit, but the whole pee/bladder thing really kicks my RLS into high gear. I have to get up 4 or more times a night to relieve the feeling, but then its the same thing over and over: just a trickle.
Sadly even during the day my RLS and this pee issue affects my daytime routine; this has gotten worse as well over the last few years, my daytime routine being slammed by this condition.
If anyone has any suggestions for people like us in regards to other sites or resources I would love to hear about them, and from you. Thanks!