New Here

[Hoggsr6]

Hi, I’ve just joined as feeling slightly alone. I have rls, hav3 suffered for some time but didn’t really know what it was until recently. It has started interfering with my sleep now. Doc has put me on meds but they don’t seem to be helping.

I do have a question though, I have just started getting similar sensations in my arms. It drives me crazy!

Should I go back to the docs? Am on enough meds for other th8ngs and don’t really want to be pumped with meds but on the other hand, would do anyth8ng for a good nights sleep

[martino]

Hello! There is a wealth of information from people on this site and many will understand your situation. Do you see a neurologist? If not it may well be helpful to get a referral as many docs don’t know a lot about RLS. In the first instance see the doc about your immediate concerns.

[Pam34]

Hi and welcome

We need a little more from you before we can offer advice!

What meds has the doctor put you on, what dose and how long have you been in them?

Secondly what other meds are you on? These can sometimes worsen the RLS.

Fill in the gaps and we can take it from there.

Pam

[Mona23]

Welcome! There are lots of good people and good ideas throughout this forum, so a lot of info is available to you. As Pam34 said, if you can tell us a bit more, we can be more heloful to you. I’ve only been in the forum for a few months, but I’ve had RLS for almost 40 years.

[Hidden]

Hi Hoggrs6 - Welcome to the RLS forum. Many people have issues with arms and legs. There are many things you can do to try to control the external interference - like wireless devices in the bedroom and leaving the wi-fi on at night. Search through this forum and you will find many suggestions to try in addition to talking with your doc. Then holler if you have specific questions? We will be glad to help you..

[Ert223 in reply to Hidden]

I find when I sit next to a large lcd computer with a router close by my legs go really crazy.

I use opiods/benzos/marijuana two hits. Tried many diets/accupuncture/natrapathy/all a bunch of half baked bs. Get to a neurologist that does not have a problem with opiots...

of course then they have to send you to a pain specialist who knows nothing about rls.

Exercise do not over do the legs...I used to give them a good workout but it make them

hurt so dam bad...Just bicycle a lil and if I pump iron I leave my legs out of it

[Hidden in reply to Ert223]

Yeah - We have to turn our wi-fi off at night. I would recommend if you can that you put it somewhere not so close to your computer. Ours is in my husband's office so it's not so close to me. It's interesting... I was reading my tablet the other night and fell asleep while I was doing so. That was the worst night I had in years - the entire night I jumped and jiggled.. Then in the morning I saw the tablet and thought "Sheesh".. Won't do that again. Nothing wireless in the same room. I can't do CBD - it's illegal here.. BUT I have found that Voltaren Gel will work pretty well, and I take Lunesta and Tramadol... I've done diets and eliminated a load of things and none really made any difference. I also make a tea of wild lettuce (Lactuca Virosa - "nature's opium") and Valerian. A cup of that at night does a lot to help me get to sleep, although I have to switch off of it now and then or it doesn't work as well.. Take care, here's hoping you get some sleep.

[peterfromlondon]

its quite common too get it in your arms ,but do get it checked out if u can ! welcome too this group !

[TEAH35]

Welcome, you've come to the right place. You are not alone, we know exactly what you're going through. I am 65 in a couple of months and I've had it since I was 5, and wasn't diagnosed until I was in my late 40s. Like you I didn't know it had a name. I take a very heavy drug called Sifrol, (also prescribed for Parkinson's). In America and the UK it is known as Mirapex. I would not be alive today if it wasn't for this drug. But be warned .... it has very hideous side effects. They can be controlled as long as you're aware of them, but, (as you no doubt know) RLS symptoms are painfully uncontrollable. For me it works 100%. It doesn't aid sleep but that's a whole different problem. I take meds for that too. Talk it over with your Dr and good luck. And remember .... on this site you are definitely not alone.

I have all over body symptoms ... from my head to my feet. It sux.

BUT: I don't have any cancers, and the only way it can kill me is if I let it, and I choose not to let it ... today.