oy, this is tough: I just wanted to... - Restless Legs Syn...

Restless Legs Syndrome

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oy, this is tough

Belsheart profile image
3 Replies

I just wanted to check in. I'm now on 1200 gabapentin and still up with rls/plmd. jumpy legs. I got myself off the miripex and I am now pretty much symptom free in the day time and up until about 9 pm. SYmptoms really increase as the night wears on. tonight my left leg is driving me nuts. I get my iron levels checked again on monday. I find myself wondering if I will ever sleep a night again. Oddly, by about 6 am, my legs settle down. hope someone else out there is getting a bit of rest

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Belsheart
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Katerina22 profile image
Katerina22

Maybe try an opiod to help you or switch to pregabalin.How much time did it take you to get symptom free at daytime after cutting down on mirapex?

Belsheart profile image
Belsheart in reply to Katerina22

Well, i noticed today that i do still have daytime symptoms. But it is bearable in day time. I can't take opoids due to other heart/ oxygen issues. But doctor told me to increase gabapentin. Apparently 1800 mg is the typically effective dose. So I'm adding in more tonight. My last day of miripex was June 10, though I'd been weaning down for a while. How are you doing?

Katerina22 profile image
Katerina22 in reply to Belsheart

I am rls free at night but experience daytime symptoms which is hard.I have tried different meds and i am opiod free now.

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