Levocarb

[SueRytt]

I’ve just discovered and joined your forum. Thought I’d ask if anyone has experience with Levocarb? I’ve had rls for many years and only found a doctor (in Canada) about 4 years ago that would take me seriously! He prescribed Levocarb, but it’s no longer working.

Thanks

[Joolsg]

If it's no longer working you need to go back to your neurologist. Levocarb is no longer first line treatment as it is the most likely to cause Augmentation- that's where a dopamine agonist(DA) stops working, makes RLS symptoms worse and the RLS moves to other body parts , like your arms or legs.

If the DA hasn't made symptoms worse, you can sometimes change to another DA ( like the Neupro patch). However, if the symptoms are worse and you are suffering Augmentation, the only option is to reduce slowly over months/weeks with the help of a strong opioid painkiller and start new meds like Gabapentin or Pregabalin.

Put Augmentation in the search box ( top right) and you'll see lots of links to it.

[SueRytt in reply to Joolsg]

Thanks so much Jools! Yes, the symptoms are worse. I’ll be talking to my doctor soon!

[SueRytt in reply to Joolsg]

Went slowly off the medication. Great results! Thanks so much for your help!

[Joolsg in reply to SueRytt]

Delighted to hear that Sue. I hope you are getting some peaceful night's sleep. Take care.

Jools

[SueRytt in reply to Joolsg]

I just wrote a post called Hope for Insomnia...because I need some ! Lol! Hope you can find it!