I've been diagnosed (only just recently), eventually with acute and chronic Restless Legs Syndrome. A name that is somewhat new to me.
I have been suffering from this horrible, undiagnosed, and tortuous disease, for over 40 years and have only just sought.out any type of serious help, as everytime I went to a doctor and tried to explain my symptoms and the type of discomfort I had been experiencing, it was unfortunately, always brushed aside, as not being important enough to require any type of serious attention and/or medication.(Of which, BTW, no one, absolutely no one, including the numerous doctors, that I endeavored to discuss this with, even seemed to try to understand, let alone show any interest whatsoever towards my discomfort).
It has been gradually getting worse, over the over the past 12 months (quite considerably so, in fact), so I took it upon myself to undergo some serious research on the Internet.
And that's when I found this group and it completely blew my mind. All of the symptoms that you talk about, are all of the symptoms that I experience.
So I finally got an appointment with a sleep specialist, (and by following the advice from one of your regular
posters, who obviously knows his stuff ... I do apologize to this person as I have forgotten your name but I seriously thank you for your advice), I rocked up to my specialists appointment, with my Quality of Life Statement in hand, (and he was 100% correct is that when you start your quality advice statement it just pours out and you cannot stop. I found it very easy to do and quite cathartic.
And without any hesitation whatsoever, I was immediately diagnosed as having acute and chronic RLS.
He has ordered a sleep study, of which I shall undertake in three weeks time. And in the meantime, has prescribed some sleeping tablets to assist with my insomnia, which apparently is also quite common with suffers of this disease.
He has also presented a drug, of which I have never heard of before, with the name of Sifrol. And since seeing him,
approximately 8 days ago, my life has changed, indescribablely for the better. I now sleep a totally uninterrupted blissful, dreamless sleep for almost 7 hours every night, and my legs are totally 100% still.
But I have to admit, that I find myself to be quite concerned, when I read on this site, the warnings expressed regarding the use, and the dangers, connected to my new drug, Sifrol. However, (my new best friend and savior), my specialist does not seem to share my concerns, and is totally against the use of opiates, at least at this early stage of my diagnosis.
I sometimes want to pinch myself as I can't believe the comfort that I am now enjoying.
My work life has dramatically improved (as I am no longer continually fatigued), and my concentration level has skyrocketed and my energy level and zest for life is totally off the scale.
I have sometimes wondered, did the other doctors that I saw beforehand, think I was making it all up? (And if so, what would be my reasoning behind it? Or did they think I was attention seeking, again, at my age (51) why? I even believed, that sometimes, they thought I was a hypochondriac. I have been told by a couple of doctors, that it was quite possible that I could actually be imagining it all, or even dreaming it, and that it was even possible that it could be all in my head, and I have to admit, that occasionally, I found myself actually agreeing with them.
Oh to be fair, there was a couple of doctors who did seem to have some knowledge on the subject of RLS, (albeit very limited), and therefore did not believe that I was in the category that required any assistance, and that all I needed was to get my sleeping habits normal and regular and maybe even try some meditation.
I can honestly say quite
categorically, and without any hesitation at all, that the help and advice that I received from reading your posts, pushed me into action, and has maybe, even probably, saved my life. How can I ever thank you.