rls

[davs]

ive been suffering from this for the last 3 years ,doc put me on ropinirol wich do work to an extent but give me the most weird dreams ,yesterday i decided to go down the herble route and went for a box of wonder legs recommended by holland barrett took 1 tablet at 8 30 last night it is now past 4 in the morning legs have been worst than ever, no sleep, someone please pass me the hacksaw

[rlsandibs]

Poor you. I have been seeing an acupuncturist for a month - once a week - It might be helping. I'll wait and see - if it works, I'll let everyone know. I have never taken any medication for rls and I have had it for 20 years. Medications frighten me = there are too many side effects.

[Bee27 in reply to rlsandibs]

There are also too many side effects to no sleep too, which are much worse.

[Newberryk]

I'm on pregabalin and find they really help with my rls and helps with my insomnia which iv had for 10yrs

[Denm27 in reply to Newberryk]

Spot on, they solved my rls problems after 20 years of misery. Hope they can help other people

[Joolsg]

Did you stop taking the Ropinirole? If you stop or reduce the dose you will get withdrawal symptoms Staight away. If you decide to stop it, do it slowly with help of a strong painkiller or you'll experience a difficult withdrawal.

Herbal and alternative supplements may help once you're through withdrawal or you may need different meds like pregabalin .

[Bee27]

Give them a chance. I think they help, but you need to take them for a while. Maybe increase the Ropinrole too, if you can. Any less than 1.25 and I feel like someone has plugged me into the mains and I’m full of sparks and then I need a hacksaw or two too!

[grannysox]

Hey I'm new to the group and was so glad to see your post about ropinirole and weird dreams. I have lupus and mixed connective tissue disease all of which is an autoimmune disease. I see a rheumatologist and for years was on amytriptolene which is an antidepressant but is also used for pain management and to relax you on a night. This helped with the rls, I had started on 25mg but over time had to keep increasing by 5mg and had got up to 50mg. I had a really bad lupus flare an got an emergency app with my rheumy sadly not my usual guy. I told him that the rls was becoming unbearable and he said go upto 100mg and if that didn't work keep increasing. Things just got worse. Having lupus is bad enough without having the rls and I was beside myself with pain, up all night long pacing the floor, hitting my legs, stretches, anything to take the pain away. This went on for days and I wasn't getting sleep during the day either it just wouldn't go. I went to my gp and she gave me a weeks supply of tramazapan sleeping tabs and got me another emergency app with my rheumy. Fortunately or now I say unfortunately there was a neurologist with him who told me I couldn't be on anything worse and told me to wean off them. Then start on ropinirole 0.25 mg for 28 days then increase by 0.25 upto 3mg if need be. I claimed it as a wonderdrug but gradually needed to increase the dose. I had started having weird dreams but just thought I'd been watching too many murder mysteries! lol! But they got worse and my dose of ropinirole was now 1.50mg. My daughter who is my carer mentioned it to our gp and she said straight away it's the ropinirole, she'll have to decide nightmares (which they now were) or the rls. What a choice! Have decided to wean myself off, am taking increased doses of magnesium thanks to spookyguy on this site which is helping and am going to get other magnesium products. My gp says for me to try gabapentine? Anyone tried this? Thanks for your perseverance if you have read through all this. Would love to hear from anyone else this has happened to. Cheers